Our Little Dominic

On August 14th, 2013 Dominic James made his presences into this world! Although completely unexpected, we were overwhelmed with joy that we would be meeting our first born beautiful baby boy, We knew that with him being born prematurely that he would need to be taken to the NICU shortly after birth and we would get to go and see him shortly after. We suspected nothing was wrong due to a normal pregnancy with routine prenatal checkups and care as well as multiple ultrasounds due to knowing gestational age, to anatomy scans and in my final weeks of pregnancy, i was mesuring a little bigger so they wanted to see, and i was carrying extra fluid which they seen as no problem, due to the fact that baby dominic was growing properly measuring in the 31th percentile. An hour after dominic was taken to the NICU, we were talked to by a resident about dominics condition and that he had some abnormal things such as underdeveloped ears as well as a skin tag, maybe cataracts and a pin hole in his heart and so on. AT this point we were such an emotional disaster due to the fact we were not expecting this kind of news, as no one is when expecting to have a normal healthy baby. As the night went on we met with more doctors and finally got to see our baby boy, although he was intubated, he was just as handsome as we expected! A few days had passed and seen many doctors, some say nothing to worry about some seemed a bit more concerend and we were waitin gon the results of his chromosomes to come back. At 2 days old we had gotten the worst news that no one ever plans for. Our precious baby Dominic was diagnosed with Trisomy 18. According to some doctors, it is a condition that is looked upon as incompatable with life and many babies with this condition do not make it out of utero, and if they do they only live for a few hours to a couple days. In Dominics case, when genetics came to look at him, prior to the results of the blood work, they didnt even seemed concerned that it would be this type of diagnosis. With Dominics case, his symptoms are very mild on the outter apperance, our main concern at this point is his heart. He has a VSD which is a pin hole in the lower vavles and a narrowing of the aorta which pumps all the blood throughout his body. Our little man has proven many statistics wrong so far and we are just continuing to pray that he is in that 10% that make it past their first year! He is a fighter that has shown many doctors that he can do it, as he did getting off oxygen in less then a weeks time!!! With this being the case with our son, we have both been off of work sicne his birth. And with his condition, i am currrently going to be staying home with him and giving him the bext care he can get! That is why my husband and i decided to create a page where people are able to donate to dominics fund if they would like!! We just would love to continue to have everyones love, support and prayers for our sweet little boy!!

Donations

  • Anonymous 
    • $500 
    • 78 mos
  • Erin Makowski 
    • $170 
    • 78 mos
  • Erin Makowski 
    • $203 
    • 78 mos
  • Chip and Tammy Payne 
    • $250 
    • 79 mos
  • Anonymous 
    • $15 
    • 79 mos
See all

Organizer

Cassandra LeFebvre 
Organizer
Conway, PA
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