Im starting this campaign for my partners grandson Darragh Power he was born on the 29/03/2004, He had been ill for a few months and was finally diagnosed with cystic fibrosis on the 23/07/2004. He is13 now and the most couragous bravest boy witty and a great sense of humour for a boy thats gone through so much.
This is his daily procedure when he is going to school he is up at 6.30am to get his medication and nebulizer and same procedure at night plus he has to get peg fed at night for 9hrs 6 nights a week and bipap machine with overnight oxygen he is not growing as he should be.
He is hospitalized at regular intervals he is attending Waterford University Hospital since he was diagnosed and in the last 4 years his health has deteriorated so he is attending Crumlin Hospital.
His lungs are failing and his liver is enlarged they had to put a band on his liver to stop it expanding,He is also attending Great Ormond Street Hospital and Freeman Hospital in Newcastle in England and he may need a double lung and liver transplant pending tests on his liver end november as you can imagine this will enable a lot of expense on the family air fares meals accomodation transport, so any donations no matter how small will be gratefully received and be assured it will be spent wisely .
He is currently in Crumlin Hospital had an operation to get his port and peg changed he has a viral infection but on the mend i will be giving regular updates on his condition as the campaign progresses.
- Denise Murphy
- Wayne Dunne
- In Memory of Denis Thompson
- Powers Pub Darts Expedition
- Betty Devaney
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