I don't know if I can accurately convey my heart for this particular situation, but I will attempt.
Imagine with me for a moment, living your life as you are now, and then suddenly, and without warning, you start to feel clumsy. You begin falling a lot, you notice that you are having a hard time rising from a chair and completing every day tasks. Eating becomes so much a struggle that you begin to choke at every single meal.
Now you are in a wheelchair. The hobbies that you once had, can no longer be enjoyed-you can't work, and you cant play. Everything that you love to do, is now nearly impossible. You now have to rely on someone to get you a drink of water and to perform your daily tasks while you watch-longing for the chance to fix a meal for your family, rake the yard or do the dishes.
You now receive all of your nutrition through a tube in your stomach- you can't eat, but you desperately crave the socialization around the table. Life happens around you, it doesn't slow down and it refuses to wait.
Inside you are filled with wonder for what might be in store for you. What new limitation will I have when I wake up in the morning? You feel as if are labeled as a disease and not looked at as the person that you are; because the person that you once were is the person that you so desperately long to be-she is in there, she just can't come out. The days and nights are long and you are faced with one struggle after the next. You are often misunderstood as you frantically search for answers for this path that you are forced to take. One day after the next you are forced to become accustomed to your new challenges while trapped in the prison that is now your body.
It sounds terrifying, doesn't it! That's because it is. I have only given you a small glimpse of what Linda faces on a daily basis since she has been diagnosed with ALS. She has always been independent and active but now she is severely limited in what she can do physically.
Do you want to make a difference? Here's your chance! I would love to see Linda be able to be as independent for as long as she possibly can, there's plenty of resources out there, but unfortunately, a lot of it is not covered by insurance.
Those of you who know Linda personally, have over the years have enjoyed waving to her as she swings happily on her yard swing. This year is the first year that she has not been able to swing, and it is one of her favorite things to do. I want to purchase an adaptive swing for her to meet her needs and also to help keep her safe in the process.
Next, I would like to purchase a scooter hauler for their car. That way she can move about more freely when they leave the house.
Mobility and independence are important to everyone...let's do what we can to help Linda achieve this.