When I was just over a year old I was diagnosed with Neurofibromatosis NF1.
My family and I will be participating in the Pittsburgh NF Walk in the Wild at the Pittsburgh Zoo & PPG Aquarium on Saturday, April 28, 2018. We would greatly appreciate your support.
Your donation will help Neurofibromatosis Clinics Association (NFCA) provides funding for NF research and contributes financial aid to the NF Clinic in the Neurology Department at Children’s Hospital of Pittsburgh.
Thank you in advance for your help!
Love, Sadie Grace!
What is Neurofibromatosis?
NF is caused by a change in our genetic material. The change in the genetic material that causes NF1 and NF2 can be inherited from a parent or it can occur spontaneously at conception. The NF gene is always present at birth, though symptoms may not appear until later in life.
The neurofibromatoses (NF1 and NF2) are two separate genetic disorders which cause tumors (mostly benign) to grow on the covering nerves anywhere in the body at any time, including those under the skin and elsewhere, potentially affected the brain, eye, ear, throat and spinal cord.
NF side effects can include:
· Visual and speech impairment
· Scoliosis and bone deformities
· Digestive tract issues
· Brain tumors
· Learning disabilities, mental retardation
· High blood pressure
· Early or delayed puberty
The disorder affects 1 in 3,000 males and females of all races and ethnic groups. No two cases are the same, not even in the same family.
Does NF have a treatment or cure?
At the present time, there is no way to prevent or cure NF.
To learn more visit the NFCA website at http://nfpittsburgh.org/
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