A Hopeful Dream

I'm terrible with words, and have no clue where to begin. I've never really fully talked about my journey with alopecia, so bare with me. When I was three years old is when it started. It was just a normal day like any other, I remember getting out of the bathtub, and I was brushing my hair. And as you see my hair was Long and beautiful! But this time it wasn't the same., my brush became full of hair. I remember running to my mom screaming asking what was wrong and that's when my first bald spot was noticed., I remember after that being in and out of doctor offices and hospitals getting every test imaginable done. But when I was little alopecia wasn't something people really knew of. I remember one doctor tried to say my parents neglected and beat me, and that's why my hair was falling out! Which was outrageous. Until one day we found a doctor who diagnosed me with alopecia areata universalis. And that's when my entire world flipped upside down at a young age. I had no clue what was ahead me, all I remember was that I was different and couldn't understand why. I was horrified because my sister had long beautiful hair but hers wasn't falling out. By age 4 I was completely bald, I lost complete hair on my entire body. I had no eye lashes , no eyebrows I had nothing, I literally felt like nothing but skin. My family always stood by my side and did everything possible to protect me, and to make me feel beautiful . But nobody could protect me forever right?! School started and of course we couldn't afford the fancy wigs, we didn't even know really anything about it. I still can't believe they let me wear a grey wig my first grade year , even though they say it was strawberry blonde but my parents said I loved it and refused to pick anything else out lol. Kids were never dumb. I remember sitting in class and the teacher walked out of the room. The kids were whispering but I had no warning of what was coming. I remember sitting there and all of a sudden I felt a huge breeze on my head with a tug, my wig was no longer on my head, it was on the floor where one of my classmates was brave enough to see if my hair was a wig and pulled it off my head. All I remember is running out of the room crying with the kids pointing to me, in fact I ran all the way home!!! Lol bullying was never easy, but I always tried to remain positive and remind myself god doesn't give anyone a battle they can't handle, he has a purpose for everything. I understand it more now that I'm older, but the scars will always remain. But it has shaped me into a strong over loving person!! My point of this is since I lost my hair I have never dreamed of anything more, then having it again. There's not really any treatments. I tried the creams they blistered my head all over and burned so bad. I fought through it but it was hopeless. I gained some of my hair back when I hit puberty but it comes and goes so much. The way this world looks at hair is mind shattering. Hair is used as a way to define beauty, it is a way to identify and express who you are! Don't get me wrong I love who I am, and am so thankful for being blessed with a way to see the world differently then others. But to know the feeling of hair, and having a headache because my hairs up too tight, or having a bad hair day when really it's not ( which I have everyday lol) or just being able to walk in a room and not be starred at because you're not physically different would be amazing. I would do anything to have the dream filled. When I was a little girl i used to put panty hose on my head, all the different leg pieces I would braid and put up in half lol but too be honest I never felt more beautiful because when I looked in the mirror it wasn't panty hose, it was a form of hair to me. I'm not a person to ever ask for anything, but I recently found out my dream can be filled. But of course all dreams come at a price. It is called a cranial prosthesis , and with this I will have a very natural look of hair, and be able to experience everything I've craved since I was 3. But I could never do it myself being an only parent. Idk if this will help, but everyone is telling me to create one of these so hear I am! Wiping my tears as I cry lol but seriously any help would forever be grateful and would never go unnoticed!!!! I seriously love all of you and anybody who even took the time to read this and considered helping. Just the thought means a lot to me!! ❤️❤️❤️❤️ soooooooo let's see if we can make this dream no longer hopeless!!! Ps. Im terrified to hit the next button by the way lol but a dream has to start somewhere right?! So here goes nothing! and if this does happen just know I will keep you guys updated with videos and pictures, and of course I'll be crying again so don't mind the tears please lol

Donations ()

  • Rachel Casto 
    • $20 
    • 31 mos
  • Laura Williams 
    • $50 
    • 31 mos
  • Peg and Dave Scofield 
    • $25 
    • 31 mos
  • Victor Bigham 
    • $100 
    • 31 mos
  • Marlita Tackett 
    • $200 
    • 31 mos
See all

Organizer

Amber Tackett 
Organizer
Springfield, OH
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