After a search of over 30 years we are now confident that both suffer from a very rare genetic condition called hepatic porphyria which has led to them both requiring full time care.
The only definitive way to officially diagnose, and hence treat, this debilitating illness is to preform genetic tests on both.
Due to their location in Malaysia, the extremely high cost of daily medications (AUD$50/day), and the estimated cost of the genetic tests (approximately USD$2000 per person), we are seeking help to cover these costs.
Peter has been full time carer and can only get part time freelance work so any help is appreciated. This has been a long and difficult struggle and we hope that you will open your heart to relieve the relentless pain associated with this illness.
- Anne Bada
- Quincee L
- Gail Maddigan
- Ian Miller
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