Cj’s Medical Fund drive by KofC2475

Hi! I want to introduce you to my wonderful son, Christopher ( CJ )He was born 6/22/10. He was diagnose with HLHS ( Hypoplastic Left Heart Sydrome ) meaning Left Heart didn't develop. CJ has had 3 open heart surgery's 4 cardiac cath ,3 other surgery , and lots of procedures,lots of doctor appts ( approx about 2-3 times/month) ,lots of hospital stays,weekly therapy and goes to a special preschool. Among many features HLHS has, speech,mentally physically delay's among them. ( not all cases has this. CJ is 4 1/2 years old and his basic communication consists of signing (he knows about 10 signs) and a handful of words. Which leads to tons of melt downs when we can't understand what he wants or needs. Also leaves him to not playing with kids in public because they can't understand him. Which brakes our heart because he is the sweetest,kindest little boy. CJ has shown great effort in trying to communicate his needs. CJ is Feed through Gtube, and drinks water by mouth. He would be able to sign if he wants something to drink. At the age of 3 he was diagnose of Kabuki Syndrome. And just tested last month due to some issue from his insurance for coverages. Lots more of doctors visit and procedures ahead of him. His schedule to have a procedure this year of feb 25 for ear tubes and to follow another procedure for his sub mucus clip pallet. This procedures are minor but due to his Heart condition this is big and needs clearances from his cardiologist and this are out patients but due to his heart they have to observe him overnight. My family of 5 with my wife working full time is hard. Our rent is 1450/mo, 470/mo car payment,160 car insurance, 150/mo for co payment for medicines,220/mo cell phone,340/mo for utility bills,400/mo food,120/mo for toiletries, and every time we go to CHLA our expenses goes up. Approx 150 dollars for our gas and food not including lodging. There's some foundation's help us and we're so fortunate of st Vincent de Paul of helping us 4 months of paying some of our rent. ( sept-dec). The 4 1/2 years of caring a child with special needs is tough but with my family and some friends on our side makes a Big difference.


Thank You!

CJ is born with CHD i.e. HLHS and suffers from Gerd, low tone muscles or hypotonia, unspecified hearing loss. At an early stage of his life he went to a 2 major open heart surgery(Norwood and glenn procedure); and was suspected with kabuki syndrome just recently. CJ is fed through G tube, frequently suffers from ear infection an ear tube was placed in order to avoid it, but needs replacement anytime soon. By the end of this year he might undergo his Final heart surgery called the Fontan procedure.
We want to be there on his side when he faces a very difficult Battle! A very challenging circumstances for us You may think! but with the powerful prayers and support from You "Everything is Possible!".


CRB ,


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