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RARE TWINS NEED ACCESSIBLE BATHROOM

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I have twin girls with Emanuel syndrome. My name is Julie and they are Abbey and Kadi. They have a very rare genetic disorder. Less than 500 people are known to have this, that makes them each one in 12 million. They also have cerebral palsy. They have seizures, eat with g-tubes, do not walk on their own, and need all their daily activities done for them. Kadi had surgery on her hip in June. She needs a bigger bathroom with a roll in shower. We are going to convert our attached garage into a bedroom, bathroom for them. They are also the happiest girls you will ever know. They have the sweetest smiles and I am very lucky I was chosen to be their mom. We both work full time and just can not afford to do this on our own. We would be very blessed to have this happen. They are only going to get bigger and heavier. Thank you for taking the time to read this.

Donations 

  • Anonymous
    • $50 
    • 10 yrs

Organizer

Julie Andra- Mcdonough
Organizer
Clearwater, KS

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