This account was created to help jacob spangler. On Sunday night Jacob went to Enloe with what we thought was the flu. They ran some tests and found his red blood cell count was low and that his kidneys were failing. They flew him to UC Davis where they finally diagnosed him with atypical hemolytic uremic syndrome. A disease that mainly affects kidney functions this condition causes the red blood cells to be destroyed faster than the body can make them. Only 300 people are diagnosed with this in the United states. He has had 2 blood transfusions and has to travel back to UC Davis twice a month for an enfusion of soliris. From what I have been told, Doctors and Insurance Company have given the go-ahead for Jacob to have his infusion treatments here in Chico. One major obstacle is that they have no one that is trained to administer the medication to children. Don't know exactly what credentials you have to have but hope a specialist or a hospital can clear the way for some training. Once again, AHUS is so extremely rare not much is known about it.That's where we come in. Families, doctors, nurses, hospitals and friends need to help us spread the word. We are NOT complaining about going to Sacramento for treatments every two weeks. We are so great full that there is a treatment!
PLEASE, if you have time, get on your phones or computers and look up aHUS. Let's all learn more about this rare disease and help support Jacob on his journey