In September 2016, John and Gretchen were blessed with a beautiful baby girl. As the months went by Gretchen and John became concerned that Hadley was not reaching milestones that other babies her age were. They were reassured by their pediatrician that all children develop differently and to not be concerned.
At an 8 month check-up, Gretchen was adamant that Hadley was not progressing like a child of her age. The pediatrician validated Gretchen's concern and Hadley was diagnosed with Torticollis. Torticollis is a muscular condition that causes twisting of the infant's neck. Hadley was then placed in pediatric physical therapy sessions.
These sessions greatly helped Hadley, however she was not improving as much as what would be expected. Hadley was then referred to a pediatric neurologist in Denver. In October, John and Gretchen were able to get Hadley an appointment. This appointment included multiple labs draws for genetic testing and an MRI with general anesthesia.
The diagnosis that John and Gretchen received was devastating. For some unknown reason Hadley has damage to her white brain matter. The full extent of the disabilities at this time is unknown. However, it is hopeful that with early intervention, Hadley will and can overcome this road block.
Hadley has proven over the last few months, that she is a fighter and she will face this challenge head on. As you can imagine the medical costs for John and Gretchen are becoming overwhelming. Gretchen has had to cut back on the days she is able to work, so that she can get Hadley to her multiple physical and speech therapy appointments each week. Hadley also requires one on one care and is unable to be in child care facilities.
Gretchen is a registered nurse and John is a high school teacher. The couple have rooted themselves in Colorado, but their family lives in Kansas. Any financial help with these medical costs would be greatly appreciated. We would like to lessen the financial burden so that John and Gretchen can focus on Hadley.
Natalie, Colleen and Marianne
- Jennifer Tilley
- Kara Kilday
- Sandra Kort Hyra
- Sarah Premich
Organizer and beneficiary