Help Our Family Continue Nathan's Care

Donations will help us keep up with household expenses, medical expenses and everything that helps continue nathan's care. For this campaign we will not be adding a goal, We are leaving it up to the people to decide what is in their heart to give. 

Our Story:
Nathan was born with a Rare genetic Disease called CUTIS LAXA TYPE 3,  this diagnosis has no treatments and no known cure. In order to take care of Nathan we had to leave our careers. It's uncommon for both parents to leave work but our case is different. Nathan needs 24/7 care due to his symptoms: He has growth deficiencies, Intellectual disability, loose joints & skin, cataracts, corneal abnormalities, Mal Rotation, seizures, involuntary muscle contractions, Trouble eating, cyclic vomiting and severe acid reflux. Nathan could
not be left alone due to his *seizures, severe acid reflux and breathe holding spells. I takes the nigh shift from 1:00am to 9:00am and my wife Pamela takes the dayshift from 9:00am to 6:00pm. During the day we find odd jobs to do from home, not enough to cover some expenses at times.  Therefore any help is Extremely Appreciated. If you're not able to donate please share our story and feel free to read about nathan's diagnosis, maybe you can do more research on it. Thank you. 

https://www.cutislaxa.org/what-is-cutis-laxa/

https://www.omim.org/entry/616603

https://moviecultists.com/what-is-cutis-laxa-type-3

Rare Disease organization: https://rarediseases.org/rare-diseases/cutis-laxa/

mutation: https://medlineplus.gov/download/genetics/gene/aldh18a1.pdf

https://pubmed.ncbi.nlm.nih.gov/26829900