As most of you know I traveled last year to Indiana University Health Hospital in Indianapolis to see if I was a candidate for a multi visceral transplant. While there for a week of grueling testing, I was completely overwhelmed and exhausted. I had to have a special test to see if the cancer had moved outside of the intestinal area.
I found out two weeks after having my special test the cancer had spread to the lymph nodes in my left clavicle area of my neck. I had the lymph nodes biopsied and it came back malignant for carcinoid. Therefore I was no longer a candidate for the transplant. I was completely devastated and felt that GOD had failed me, because the transplant would have freed my body of cancer.
What I didn't know, is that GOD was watching over me. He didn't fail me nor did he abandoned me, because if I had the transplant the cancer would have spread through my body like wild flower and 're-infect the new organs. I would have been dead in a week.
I will be taking another trip to Ochsner in Louisiana to try new therapy, in hopes that they can at least shrink the tumors and maybe now I could eat. I'm on new meds and the out of pocket cost is outrageous. I've been trying to get help to come in and sit with me for a few hours a day, but the insurance won't cover it. They told me I have to pay out of pocket for companion care, something I can not afford. They charge between $16 & $20 dollars an hour for a minimum of 4 hours, it's just something I cannot afford to pay.
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