In May, Nikki's Lyme Literate MD (LLMD) doctor, whom specializes in the treatment of Lyme disease and coinfections from Lyme, became very optimistic that if they could immediately get her on intravenous antibiotics, they could get her into remission. The intravenous antibiotic treatment plan that she needs to be on must be administered st least six months in order to penetrate the blood brain barrier. Oral antibiotics will not work (she has been on these for the last three years). However, the insurance company would only approve 30 days of this treatment. She had a port surgically placed in her chest to receive the treatment, hoping the insurance company would allow for more than the 30 days. Subsequently, the insurance company would not reverse their decision. Nikki and her husband, Bill have appealed the decision twice, but the insurance company has denied any further coverage. Her LLMD also appealed on her behalf, with no success. So, she now has medical bills that were not covered since June and any further necessary treatment will also not be covered. She needs to stay on the medication until November in order for the antibiotic regimen to work.
Nikki has been fighting for her life, and if she cannot continue this aggressive treatment, she will not survive.
Nikki and her husband have been struggling to pay out-of-pocket medical bills for the last 2 years (which have escalated to over $40,000), and they no longer have the means to pay for continued treatment. The out of pocket cost for these antibiotics is roughly $2000-$2500 per month, the nurse which has to go to Nikki's home to access the port once a week is $90 per visit, as well as blood work which is not covered and several autoimmune supplements costing $350, not to mention the doctor visits, which are very necessary. Nikki is in dire need of these antibiotics for at least 6 months
At this point, they have exhausted every avenue available and this is my attempt to save her.
This terrifying disease is a dragon which raises its head and causes horrible and crippling symptoms. It confounds me that a person with cancer can get Chemo, but a person with Lyme, has to fight to stay alive! Ultimately, this Nikki's fight for life.
Thank you for considering donating to my sister's cause.
Tami Ulisse Forrest
For more information on this disease, please go to www.lymedisease.org
- Sam and Lisa Margolin
- Tammi & Alex Pinckney
- Della Hodsden
- Susan Messick
- Les Capouya
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