The first hour everything seemed normal...this being our 4th time in the delivery room!
They had just placed both girls side by side for the first time.
The nurses were doing their final inspections and an old school very attentive nurse noticed that Shiloh kept having mucus come up, initially they thought the extra mucus was related to her cleft lip, as she investigated further she discovered that a tube inserted through the mouth down into the stomach should be around 20 cm and they could only get the tube to go down 10 cm. She said there has to be a blockage of some kind.
They quickly took her away and an hour later the doctor came into our room and said we believe your daughters Esophagus is not connected to her stomach and in conjunction with these two concerns we usually find other organ related issues. He mentioned other possible concerns which initially left us concerned for her very life.
We pulled everyone together and began praying...the doctors joined in our prayer time. I began searching the scriptures and found great comfort in Romans 15:13, John 11:40 & Ephesians 3:19. Through these verses I was able to understand my job in all this was to simply believe in God. His Glory could be shown on earth or in Heaven. I also found hope and joy in believing and trusting in his perfect plan for our life though it may not end up the way I want it to.
After a long week and one surgery already to insert a feeding tube and to scope Shilohs throat they have discovered that she has Esophageal Artesia which is a rare issue wear the Stomach and Esophagus aren't joined together. The quick explanation is food can't get to the babies belly.
The great news is that it's completely operable and most likely after the first year of life, she should lead a normal life.
The bitter sweet news is that she has to remain in the hospital likely for the next 6 months. We have very limited physical contact with her as she is in a fully encased bed to protect and monitor her. We are able to stick our hands through little holes and touch and speak to her. She will have at least two more surgeries to repair the esophagus and additional surgeries to repair her cleft lip.
We will be traveling to another hospital...its uncertain at this time but the doctors suggested Boston.
Please be praying as a piece of our heart is left in St. Johns hospital. We plan to travel their everyday to be with Shiloh to touch, speak and hold her when we can.
Tom and Lisa have insurance. The money that is being donated at this time is for their travel back and forth to and from the hospital and for any extra expenses they have along the way! They have amazing faith and are following Gods plan for their life. Thank you for taking the time to read this and donating to help them!
- Diana koehler
- Scott Tureskis
- Bob Bolin
- richard bowers
- Shannon Creedon
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