Help Julian Fight Epilepsy/SUDEP

This is for my son Julian. My wonderful baby boy that on top of having a difficult birth experience,having celebral palsy and developmental delays our hardest battle yet is epilepsy. In 2013 I almost lost him in my arms with his first granmal seizure. Monitoring him was what the neurologist suggested as it was his first seizure. Awhile passed and no seizures until not too long ago where they started again and more frequently. We just recently did a 3day study that confirmed my baby has seizures in his sleep. He is a high risk patient of SUDEP ( Sudden Unexpected Death in Epilepsy) if the first almost death experience wasn't scary enough I live terrified every night now knowing he can pass in his sleep. To reduce the chances he needs close monitoring. That is why I am asking for donations. To get him an antisuffocation pillow and an oxyimeter and a special alarm monitoring device that alarms me for any irregular movement in his sleep. With only one working parent it is hard for us to maintain a home such as pay bills take care of my other children and get medical equipment and medication for him. Any donation amount helps as well as prayers and sharing this. Please help us sleep at night! God bless you all!

Donations

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  • Stefanny Hernandez  
    • $20 
    • 43 mos
  • Ricky Rivera 
    • $100 
    • 43 mos
  • Johanna Figueroa 
    • $25 
    • 43 mos
  • Eliza Jimenez 
    • $40 
    • 43 mos
  • Carlos Rivera 
    • $100 
    • 43 mos
See all

Organizer and beneficiary

Giselle Carneiro 
Organizer
Passaic, NJ
Arthur Carneiro 
Beneficiary
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