6 year old Levi was born on the 18th Sept 2009. After a long labour & for reasons unknown Levi was born not breathing & was resuscitated. He was rushed into special care and placed in an oxygen bubble where he spent several weeks. It was discovered the resuscation caused a pheumothorax (hole in the lung). After having heart and brain ultrasounds it was explained to Katie & Gary that they wouldn't know how much the lack of oxygen had affected Levi until he was older & possibly missed his developmental milestones.
As time went on Levi encountered constant infections and was hospitalized countless times, it was also clear he was severely delayed in gross motor development. It was believed the lack of oxygen from birth had an impact on his body. This is where the journey with the RCH started and still continues today. Levi took his first steps at 26months old and still needs multiple therapies such as physio as he has ongoing balance, co-ordination & strength issues. He uses a wheel chair for trips such as hospital appointments & family outings as he doesnt have the strength & endurance to walk distances. The wheelchair was another expense for the family as Levi doesn't qualify for funding.
Over the years many other symptoms have invaded Levi's tiny body but specialists are no closer to a diagnosis. Levi undergoes endless procedures, tests and studies to determine a diagnosis but as yet to no avail. He is currently undergoing Genetic testing called Exhome Sequencing via the RCH.
Due to there being no official diagnosis, other than Autism, there is no financial support for the family which means countless trips to The Royal Childrens Hospital- The local doctors & specialists are all at the families expense. Levi is booked to have his 5th set of grommets to help ease his hearing loss, pain & infections. The cost of constant courses of antibiotics, multiple medications, petrol, parking etc all add up.
With impared vision (wears glasses), sudden hearing loss (has hearing aid), sleep apnea, severe allergies, Hypogammaglobulinemia (immune deficiency), chronic asthma, bronchitis & hypermobility (to name a few conditions) & no underlying diagnosis for his multiple medical issues you can only imagine the financial and emotional strain on this beautiful family.
The Wright family are constantly putting others first & are the first port of call for any friend or family member in need. They would be the last people to ever ask for help themselves.
Their dedication to Levi is an inspiration to their friends who we believe, would love to support them in this exhausting journey to find answers. This is why Jess and Leanne have set an initial goal to raise $10,000 in a bid to offset Levi's ongoing medical and therapy expenses.
Levi is a true little champion, even with all the challenges he faces his adorable personality shines through. He is an absolute delight to all those who share his world, a true testament to the devotion and dedication of this beautiful Ballarat family.
On behalf of Katie and Gary we truly thank you for taking the time to support us in our fundraiser and in sharing our special request
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