Hello, Our names are Katie and Chase Trumbull; and we are beginning this campaign today on behalf of our little six month old godson, Jesse Hoffman and his family. Jesse was born just before Christmas of 2015, the second child of his parents, Ali and Nate Hoffman. Earlier this year Jesse was diagnosed with “failure to thrive.” At five months old he was still the weight of a newborn despite his constant feedings. Near the end of May one of Jesse’s x-rays showed spots in his lungs, and he was checked in to the University of Virginia’s Children’s Hospital where he would remain for the next week as doctors experimented with supplemental feedings via a nasogastric feeding tube and performed various tests to determine a cause for his condition. You can imagine the worry of his parents and the strain on their family as Ali remained with Jesse in the hospital and Nate drove back and forth from their home, sometimes bringing along their two-year-old son, Eli.
After a week of testing, it is believed that Jesse has Rubinstein-Taybi syndrome, a rare genetic disease that will require ongoing healthcare treatments such as physical therapy and comes with numerous health risks that Jesse will have to face throughout his life. After having a surgery to insert a semi-permanent feeding tube into his stomach, little Jesse was able to go home with his family. However, his struggle is not over.
If you could make a donation to help cover the costs of Jesse’s hospital bills, medical expenses, and on-goingtreatments, perhaps together we can raise enough money over the course of the next couple of months to ease the burden on the Hoffman family so that all they need to worry about is taking care of Jesse and their young family. Your donation will be very much appreciated. If you are not personally able to donate, please share Jesse’s story with as many people as you can. If you cannot do that, please pray for Jesse and the Hoffman family in their time of need. We know they will be grateful for the love and support. Please consider this quote from Mother Theresa of Calcutta: “Let us raise funds of love, of kindness, of understanding, of peace and again let us begin in the place where we are with the people with whom we are closest and thenspread out.” Let us help make the world a better place by giving our support to this little child.
Katie and Chase Trumbull
- Elise Anderson
- Jami McManus
- Sarah Hart
Organizer and beneficiary