Help Nina get her medical treatment

Nina was born on August 20th,2015. She got a 9 point APGAR score. After two months we began noticing some worrying symptoms.She stopped raising her legs,stopped moving her little arms and did not have enough strength to hold her head up. After a series of treatments the doctors gave us this terrifying diagnosis-SMA type 1 - Spinal Muscular Antrophy. We were devastated and terrified. We were told that our precious baby will die before she reaches the age of 2.
Currently Nina's little body is not able to support her breathing and needs to be on Oxygen all the time. She also needs to be fed with a feeding tube.
We are not giving up, we hope and trust that we can help Nina to fight this terrible illness.
The cost of her medical treatment is extremely high. She needs to take medicine every 3 months and one dose of that treatment costs about $9000. In addition to that she needs physical therapy and various medical treatments to help her survive. We also need to purchase special equipment to help her breath, eat and function. Any prayers, support and donations are greatly appreciated.We thank you from the bottom of our hearts for your kindness and generosity in these difficult moments of our lives.