Our Amazing Grace Hi, my name is Paula Allison. Thank you so much for visiting our page. I am the proud Aunt of Our Amazing Grace who was recently diagnosed with a rare Mitochondrial disorder. Myself, our family &amp; friends are raising money on behalf of Grace, her big brother Tommy &amp; her parents Kevin &amp; Liz. <img src="https://d2g8igdw686xgo.cloudfront.net/53768186_1610040194461579_r.jpeg" width="100%" media_type="3" alt="53768186_1610040194461579_r.jpeg" /> Backstory Grace was born in March 2017 &amp; lives in Dublin with my brother Kevin Dickson, my sister-in –law Liz Dickson (Cleary) &amp; her big brother Tommy who turned 5 in December 2020. Up until last year Grace was a very happy, healthy little girl. She was a great natured baby, always full of smiles &amp; giggles. She developed normally, hitting all of her milestones. I say normally… she’s bonkers! A great wee personality. Full of “craic” &amp; mischief. A Tasmanian devil full of energy. She loves the Prodigy &amp; Fire Starter, playing at Doctor, fixing her friends &amp; toys &amp; playing with her big brother &amp; their dog Georgie.  In other words, she was what every toddler should be, no health concerns at all. In fact, it was her brother Tommy who developed problems. He has co-ordination issues &amp; attends a physiotherapist. The specialists suspect Dyspraxia but they don’t normally diagnose until around 7 years old.<img src="https://d2g8igdw686xgo.cloudfront.net/53768186_1610040526190011_r.jpeg" width="100%" media_type="3" alt="53768186_1610040526190011_r.jpeg" /><img src="https://d2g8igdw686xgo.cloudfront.net/53768186_1610040545898217_r.jpeg" width="100%" media_type="3" alt="53768186_1610040545898217_r.jpeg" /> <img src="https://d2g8igdw686xgo.cloudfront.net/53768186_1610040296424118_r.jpeg" width="100%" media_type="3" alt="53768186_1610040296424118_r.jpeg" /><img src="https://d2g8igdw686xgo.cloudfront.net/53768186_1610040336484663_r.jpeg" width="100%" media_type="3" alt="53768186_1610040336484663_r.jpeg" />  The Appearance of Symptoms At the end of February, just before her 3rd birthday &amp; whilst the rest of the world was starting to get to grips with a global pandemic &amp; lockdown, Grace developed a squint, almost overnight. It was a shock at first because it appeared so quickly, but as her Daddy had a squint when he was a wee boy &amp; her Granny when she was a child, we weren’t overly concerned. Being the cautious, loving parents that they are, Kevin &amp; Liz immediately took Grace to get checked out. Eye tests were done &amp; everything looked normal, but then new symptoms started to develop. Her balance was off, she started to complain about tiredness a lot more &amp; her once beaming smile started to look a bit different, a little lopsided. More tests were ordered. MRI’s, CT scans, blood tests, DNA tests, the list goes on. Grace was a trooper, never complaining, even when she had to stay in hospital for a few nights in October for a battery of tests.<img src="https://d2g8igdw686xgo.cloudfront.net/53768186_1610040376576636_r.jpeg" width="100%" media_type="3" alt="53768186_1610040376576636_r.jpeg" /><img src="https://d2g8igdw686xgo.cloudfront.net/53768186_1610040420997691_r.jpeg" width="100%" media_type="3" alt="53768186_1610040420997691_r.jpeg" /> Diagnosis On Monday the 14th of December Kevin &amp; Liz were asked to attend a meeting with Grace’s neurologist, the DNA results were back. Grace has an extremely rare Mitochondrial condition. It’s a degenerative disease, there is no cure &amp; it is LIFE LIMITING. We are devastated. It is every parent’s worst nightmare. Mitochondrial disease is caused by mutations in mitochondria, the tiny batteries in every cell of the body. They generate 90% of the energy that allows the cell to function. The batteries in Grace’s cells are running out.  How You Can Help We don’t know how long we’ll have our beautiful Grace so we want to start creating the most amazing memories for her &amp; her family right away. My brother &amp; his wife will be focused on creating a normal family life for Grace &amp; Tommy, sending her to nursery when it is safe to do so &amp; keeping her well. Even a minor illness could be devastating for her. Terrifying in these times of Covid. As the healthcare system in Ireland is very different to our NHS, Kevin &amp; Liz will have to continue to work so they can try to manage Tommy &amp; Grace’s medical expenses as well as the usual household bills. Luckily, Liz’s family in Ireland are amazing, very supportive &amp; will help out any way they can… but we in Scotland so far have felt lost &amp; helpless. We can’t even visit just now. It’s been over a year since any of us have seen Kevin, Liz &amp; the kids. This has been hell for us but particularly torturous for my mum &amp; dad. This page is our attempt to feel a little less powerless &amp; more proactive. Our hope is that by setting up the page, we can help bring some joy to their lives &amp; relieve a little of their stress. Other than visiting us in Scotland they’ve never had a family holiday so we hope that we can eventually send them to Disneyworld maybe even Lapland for some quality time. We want Kevin &amp; Liz to be able to put your donations towards adapting their garden for the kids &amp; converting their outbuilding into a kind of “granny flat” so that when restrictions are lifted &amp; they are able to have visitors, there is a place to stay so support can be given for as long as they need it &amp; some respite can be given to Kevin &amp; Liz. And, if finances do get strained at times, funds could also be directed towards medical expenses etc If you would like to help us create some wonderful memories, support them through the most heart rending situation &amp; provide some much needed respite, please share this page as far as you can, as often as you can &amp; donate what you can when/if you can. We very much appreciate it &amp; thank you from the bottom of our hearts. I will run this page indefinitely &amp; provide regular updates on Grace &amp; the family &amp; how your donations are being spent. There will also be exciting fundraising events &amp; activities taking place when restrictions ease so stay tuned. Thank you for reading. Stay safe, be kind &amp; take care of each other.<img src="https://d2g8igdw686xgo.cloudfront.net/53768186_1610040909453213_r.jpeg" width="100%" media_type="3" alt="53768186_1610040909453213_r.jpeg" />  The Dickson, Cleary &amp; Allison families.

Anonymous

Laura Nolan

Kirsty Dillon

Jenny Cooke

Joyce Ramsay

Catherine Maher

Catriona Martin-Lennie

Aileen McDowell

Nancy Stevenson

Eoin Fogarty

Robert Kelleher

Louise Prentice

Pauline Norton

Ann Kelly

Jeanette Smith

Memories' for Grace & Tommy

platform

Platform is iOS

Android

Adyen Google Pay Development Audience

$opt_dummy_attribute

English only

Deprecate Stripe Legacy

dyn_template_ids

Adyen V6 Bene Transfer & MyMoney Campaign Organizers - test01

Bene transfer V6 and AdyenV6MyMoney Campaign Organizers - production

OneTrust next-app audience

fundCountryCode

NextDoor Share Option Users

Fundraisers with Reactions feature capability

fundCurrencyCode

US + Non-charity COs Only

locale

fund country is US and user language is English

personId

comms-internal-person-ids

Enhanced Story Experience Users

Suggested Goal Experience Users

user language is English and fund country: US, AU, DK, FI, IE, NO, SE, CA, GB; 

Poster share - new funds eligible (newest 9/18)

Streaming widgets beta user

paymentProcessor

3DS payment method

user language is English and fundCountry: US, AU, DK, FI, IE, NO, SE, CA, GB; 

currencyCode

Money Box Donation List Prompt Experiment Audience

GoFundMe Employees

ipAddress

Mark Rieth IP Address

Version 9.2.0 and above

Fund is in English speaking country

desktop

Android v12.11.0 and above

Platform is Android

paymentMethodType

checkoutType

Payment method type group to be vaulted on success

admin pr kit prod

EUR Donation Upsell

Share Text generation Skip Fundraiser

(prod) new funds eligible for amp12 (UGC gallery)

fintrac_cad_idv_form_v2 audience

paymentProcessorAccountId

fallback mode accounts

proCampaignId

p2p legacy startfundraising page

AMP24 New Funds Only PROD (DO NOT MODIFY)

Eligible for Profile Share Badge

countryCode

charityId

UKCharities

Federated Search Internal Testing

route.pathname community

US Donation Upsell audience 

Auto Thanks Feature Audience

Supporter Comments Eligible Funds

International Only

fundId

braze fundraiser group 

Payment Identity Transfers ATO Risk Check (Targeted) - Production

Fundraiser Saved Payment Method Rate Limit Bypass (Production)

leaderboard-partner-id-audience-givepanel

Version 9.2.1 and above

AUD Donation Upsell audience

fundraiserCountryCode is US/EN

Active Fundraiser - Smart Default Cadence

DAF Internal

Vault on success card payment method

Platform is iOS v11.0.0 and above

Desktop users

Person ids

United States (US) users

allow yuno fundraisers for test

Mexico country code

Posters INTL

NPO Profile Opted-In

iOS at or above 12.4.0

non-US recurring donors

Canada Campaign Owner Group

Fundraiser Without Meta Link

Scheduler payment tester gorup

charityCommunityId

Charities allow to be claimed unclaimed (PRD)

Canada (CA) users

UC Tipping v20250115 International

pymk_production_xplr_fe_team

Android at or above 12.2.0

Profile photo entry point audience

smart goals (fundraiser/manage) on test01

Activity Tracking v1 Beta Testing

start gfm intl allowed locales

Platform is iOS v11.2.0 and above

NPO upsell education category

unclaimed charities

prod_ach_audience

AI Chatbot Audience

amp13 only new funds (prod) (anyword auto)

UC Flow Enabled (Prod)

Payment Identity Beneficiary Verification - Production

shared notification bell audience

Custom users

ach frontend audience

Android v11.0.0 and above

Users Receiving Payments Paused Notifications

smart goals test01

Manage Coach - US English Organizers Only + new funds only

Team EGG - IP Address list

NPO recommendations prod

Fundraiser Without Instagram Deep Link

Native 11.4.0 and above

UC Tipping v20250107

Users Receiving Braze KYC Validation Failed

ai_title_page

anyword

openai

control

manual_entry

userEmail

template_id

userId

fundUrl

isCharityCo

email

appVersion

shouldBucketIntoExperiment

isEligibleForProfileBadge

partnerId

donationCadence

isActiveFundraiser

isPartner

isMobile

npoProfileOptIn

fundIsLinkedWithMeta

hasSessionDonation

categoryGroup

isCampaignOwner

fundHasInstagramDeepLink

Native 11.3.0 and above

Native 11.4.0 and higher

New funds eligible - Video Sharing (PROD)

GB Donation Upsell audience 

Auto Thanks V3 Rollout Audience

Thank you V3 testing whitelist

isRecurringFriendly

Is Recurring Friendly

Excluded funds - Video Sharing

NPO upsell animals category

NPO upsell disaster relief category

Logged In Users

CH Donation Upsell audience

Android v10.6.0 and above

NPO upsell essential needs category

NPO upsell medical category

userCurrencyCode

Localized Currency

NPO upsell cancer category

v11.5.0 and above

testAudience

pathname

Survicate

appVersion is at or above 12.8.0

Non-charity fund

isChallengeFundraiser

challenge-fundraisers

Payment Identity Launch Verification - Production

New funds eligible - Posters v2

CAD Donation Upsell Audience

Braze Email Tester

NPO Profile Opted-Out

iOS App Version

hasKnownDonors

PYMK has donors

iOS v12.3.0 and above

Memories' for Grace & Tommy

Still £96,404 to go. Help us build momentum.