Mason's Funeral Funds
Donation protected
Mason was diagnosed with FA or also known as Fanconi Anemia, 10 weeks before he was born. Too much fluid in his brain and an abnormal arm growth during an ultrasound was what prompted a genetic test to be performed.
He was born with an esophageal atresia with TE fistula (his stomach connected to his lungs while his throat stopped halfway down his neck), a heart defect called a bicuspid aortic valve, his right arm is shortened beneath the elbow and bent about 90 degrees toward his body, he is missing the thumb on his right hand, the thumb on his left hand is missing a critical bone making it immobile, and he is hard-of-hearing and needed a hearing aid in his right ear.
He has undergone multiple surgeries to connect his stomach to his throat. There were many procedures to keep his throat from rejecting the newly attached stomach. He was at high risk of pneumonia because of major reflux and required a GJ-tube for food so that his stomach can be bypassed.
Last Friday, August 19th, Mason had an asthma attack stemming from his tracheomalacia (floppy airway), in which he went without oxygen long enough that led to other complications. He was rushed to Masonic Children's Hospital where, after 40+ mins of CPR/AED, they were able to revive him. An x-ray showed that his breathing tube had become dislodged. Also, swelling developed inside his brain and he had to be rushed to have it drained. Doctors took the parents to a consultation room and they were told that his brain trauma was severe and that he is most likely gone. At that point, they did everything that they could and was just waiting for a response. Mason's only movements were reflex, but his eyes were not responsive. It was at this time, the family was informed of having to make an undesirable decision in removing his breathing tube.
Mason's life consisted of weekly medical appointments and procedures, but he was the most lovely child and was never without a big smile. He was a sweet and charming little guy that lit up the room with just his mere presence. There will never be enough light that can measure up to his and we will always remember it.
We will be forever grateful for all the contributions made during this time of distress. Mason's funeral is set to Saturday, August 27th. All proceeds will go to Mason's parents for help in all medical and funeral expenses.
He was born with an esophageal atresia with TE fistula (his stomach connected to his lungs while his throat stopped halfway down his neck), a heart defect called a bicuspid aortic valve, his right arm is shortened beneath the elbow and bent about 90 degrees toward his body, he is missing the thumb on his right hand, the thumb on his left hand is missing a critical bone making it immobile, and he is hard-of-hearing and needed a hearing aid in his right ear.
He has undergone multiple surgeries to connect his stomach to his throat. There were many procedures to keep his throat from rejecting the newly attached stomach. He was at high risk of pneumonia because of major reflux and required a GJ-tube for food so that his stomach can be bypassed.
Last Friday, August 19th, Mason had an asthma attack stemming from his tracheomalacia (floppy airway), in which he went without oxygen long enough that led to other complications. He was rushed to Masonic Children's Hospital where, after 40+ mins of CPR/AED, they were able to revive him. An x-ray showed that his breathing tube had become dislodged. Also, swelling developed inside his brain and he had to be rushed to have it drained. Doctors took the parents to a consultation room and they were told that his brain trauma was severe and that he is most likely gone. At that point, they did everything that they could and was just waiting for a response. Mason's only movements were reflex, but his eyes were not responsive. It was at this time, the family was informed of having to make an undesirable decision in removing his breathing tube.
Mason's life consisted of weekly medical appointments and procedures, but he was the most lovely child and was never without a big smile. He was a sweet and charming little guy that lit up the room with just his mere presence. There will never be enough light that can measure up to his and we will always remember it.
We will be forever grateful for all the contributions made during this time of distress. Mason's funeral is set to Saturday, August 27th. All proceeds will go to Mason's parents for help in all medical and funeral expenses.
Organizer and beneficiary
Sunshine Yang
Organizer
Fridley, MN
Maly Lee
Beneficiary