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Help me hear!

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HI! I am Megan and I do not ask for much from anyone. I am usually the one who helps everyone else. This time I am seeking help getting hearing aides so that I can hear better. I recently had a Hypermobile Stapes Footplate Surgery. I also have SCDS Superior Canal Dehiscence Syndrome bilaterally. I have severe hearing loss in the right ear as well as the left but since the surgery, I now have loud persistent tinnitus in the left ear. It drives me crazy. I hear something called Violet noise with high pitch intervals that are constant. I want the noise to stop and was told it is caused by nerve damage in the ear. It will not go away. They do have hearing aides that will help with the tinnitus and the hearing loss as well. Unfortunately they are not covered under any insurance. They are expensive and regular hearing aides will not help me. I want to be able to hear and I want the noise to stop. I am asking for help to get these hearing aides so that I can try to live a better life. It is affecting my well being and my day to day activities. My case will be added to the article in the Frontiers in Neurology and Neuro-Otology. You can read about the disorder and learn more about it and hopefully you will see about me soon in there. www.frontiersin.org. In the search section type in Gadre. you will see the article and can learn about the procedure and what it does and how it affects people. Help me get back to normal and can enjoy helping others again.

Organizer

Megan Williams
Organizer
Pittston, PA

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