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Baby Bugeanu Benefit

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Meet Baby Girl, Myra Grace Bugeanu.  A heavenly gift, with ten little fingers and ten tiny toes.    A headful of dark hair and an angelic face, punctuated with a cute little button nose.  In His ultimate wisdom, God blessed this little pink bundle with faithful and loving parents, Danny and Lumi.  The only daughter, Myra is the baby sister to her three “protective” older brothers:  Jason (8), Kaleb (6) and Levi (4).  Nobody better mess with this little girl in the years ahead!

Underneath Myra’s baby soft skin, however, are bones that are far less than perfect.  Her bones can break with little or no pressure at all.  Myra was born on April 26, 2016, with Osteogenesis Imperfecta (OI), also known as brittle bone disease.  Upon birth, it was discovered that Myra had already suffered two broken ribs, a broken clavicle and a break to the back of the skull in utero.  She has since been diagnosed with OI Type 3, the most severe type among those that survive the neonatal period.

The Beginning of the Journey.  On September 25th, 2015, Danny and Lumi were thrilled to find out they were expecting their fourth child. Then, on November 9th, their joy exploded when, after being blessed with three healthy boys, they were told they were having a baby girl!  The pregnancy was progressing normally until February 2016 and a routine follow-up ultrasound revealed that the baby’s legs were shorter than they should have measured at this stage in the pregnancy.  What followed was a whirlwind of doctor, specialist and geneticist appointments.  They were told not only were her legs short, but her arms were as well and there were deformities present. 

Doctors determined that the baby was stricken with some type of dwarfism.  Doctors also informed Danny and Lumi that she was too far along in her pregnancy to abort the child in the state of Florida, but, if they were willing to travel to another state, they could have the pregnancy terminated legally.  Because of their strong faith that God has a purpose for everything, He is in control, and that ALL life is precious, abortion was NEVER an option!

Although at peace with their conviction to press forward, bad news kept coming:  the baby wasn’t growing, her skull was misshapen, the chest was measuring small, and her limbs weren’t moving.  All very frightening. 

Because of these concerns and the possibility of baby Myra being a stillborn, it was decided to deliver early at 35 weeks gestation.  Myra was born on April 26, 2016, at 8:15am, weighing in at 3lbs 8ozs.  Immediately, there was trouble with her breathing and she was whisked away by the team of pediatric specialists.

Today.  Myra just celebrated her one month birthday and is breathing on her own.  She continues to gain weight despite her inability to feed on her own.  Her legs are indeed shorter and bowed from the hips.  Her muscles are affected and she barely moves her extremities.  She remains in the NICU in Fort Myers (45 minutes away from her family home).  Because her bones are so weak, she will need injections of Pamidronate every three months to strengthen her bones and hopefully reduce the amount of fractures that she will certainly endure throughout her entire life.  Her first infusion has been administered without any adverse reactions.  Praise God! Lumi and Danny are juggling time at the hospital with Myra while trying to maintain some normalcy for their three young boys.  Back to work, Danny is faced with the reality that bills still need paid and mouths need fed.

The Future.  Myra’s medical condition is a permanent one.  Because of this, her medical care and thus financial needs are permanent as well.  She will require constant special, trained care, special equipment, medicine, surgeries, etc.  Along with fractures, she may endure respiratory problems, brittle teeth and hearing loss. The journey will be long.  And overwhelming.  Danny and Lumi are not ones to ask for anything.  Their faithfulness, humility and willingness to serve God in any form have never wavered.  They inspire everyone they come in contact with and are loved by so many.

Our goal to raise $100,000 is huge, but our God is bigger and powerful!  Little Myra has purpose and will certainly bring tons of joy with every smile and every milestone reached.  We know that one day, her body will be made perfect through Jesus Christ, but until then, she is ours to care for and love and she will bring many blessings.

Prayer Request.  Please pray for strength and peace over Myra’s parents and family.  Pray for Myra to feed on her own so that they can bring her home.  We also ask for her to be pain-free and pray for God’s guidance over the doctors and nurses as they care for her and make decisions concerning her treatment.

                                   Psalm 139:13-14
              13 For you created my inmost being;
          you knit me together in my mother’s womb.
              14 I praise you because I am fearfully and
           wonderfully made; your works are wonderful,
                                   I know that full well.
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Donations 

  • Donna Ryerson
    • $100 
    • 7 yrs
  • Ernie & Cindy
    • $2,000 (Offline)
    • 7 yrs
  • Daniel & Diana Tomici
    • $500 (Offline)
    • 7 yrs
  • Onica Famiky
    • $500 (Offline)
    • 7 yrs
  • Eliza Bulgariu
    • $1,000 (Offline)
    • 8 yrs
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Organizer and beneficiary

Lisa Snyder Wilson
Organizer
Naples, FL
Lumi Bugeanu
Beneficiary

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