My name is Xiomara, i am 3 years old. I have been in the hospital since June 7. Before this time i was in the hospital for a month in march. I was first diagnosed with AFM (Acute Flaccid Myelitis) but that was wrong which lead to my second stay and longer stay at the hospital. I have genetic disorder that is rare, called RiboFlavin Transporter Deficiency. I had to have a trech and a Gtube put in because my upper extremities got so weak I wasnt able to cough or swallow well on my own. I am still at the hospital.
Things have become tight money wise and need help with costs for a baby sitters to be able to visit my daughter at the hospital and afford the trips. She has some medicial bills that insurance isnt able to pay for either and we are currently trying to make ends work with other kids all younger than Xiomara...I would be grateful for any kind of help i could get i normally dont do this kind of thing.. Because i try to make things work and i dont like to be judged about not being able to take care of my kids. Its just since all this as happened i have been making ends work and need a little extra help with all the holidays coming up and another little one on the way. I would be grateful for anything.
Thank you for anything. Please if you can questions I can answer them the best I can.
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