David’s Support Fund
Donation protected
Hi my name is David.
September 2015 I had a persistent cough which I could not clear. Finally after a number of test I was sent to a Lung Specialist who had more tests done including CT scan, and discovered I had an Immune Disease called Sarcoidosis.
We were shocked, my wife Tracey and I had no idea what it was or what it all meant. My specialist assured us that it was treatable and all would be ok.
This disease will impact any Organ in the body including Eyes, Heart, Lungs, Kidneys, Liver, Skin and Lymph Nodes. But in 90% of cases it will not even require treatment. Well I appear to fall in the last 10% probably 5% once you read on. Currently I have it in my Eyes, Heart, Lungs, Nervous System, and Lymph Nodes
18th December 2015 I was hospitalised because it was discovered that I had it in my Left Heart chamber and things suddenly became very serious, if left untreated death was a big possibility from instant heart failure. I had a Defibrillator Pacemaker inserted and it sole purpose is to ensure that my heart restarts if needed. Life Insurance they call it.
Moving into 2016 things were progressing ok but it was evident so was the Sarcoidosis. After a PET/Scan in April it showed reasonable good news in that things had settled down. June I was again in Hospital due to getting Pneumonia bug called PCP. November back to hospital again when it was discovered that the disease had become very aggressive and Lymphoma was suspected to be the cause. We are 90% in the clear with the Lymphoma but treatments were not working and I was advised by my Medical Specialist that I needed to take time away from work to allow my body to get the rest and fix needed to beat this disease. I am struggling to breath, I get dizzy and have excessive weight gain brought on by the medications.
The road so far has been very hard and financially draining on savings because whilst you have all the Health cover possible clearly out of pocket gap expenses plus drugs etc... Has seen a drain of around $8,000 dollars.
This will be on going as now I am taking time from work, (who have been fantastic) on unpaid leave to try and rebuild my strength and get back to doing what is required to full fill my role in the work place.
I start a new treatment today it is hoped will reverse things and put the Sarcoidosis into remission giving my quality of life back. It is very expensive and is administered through Infusions which require Out Patient appointments, and is only administered through the Public system where you have to apply for the Drug due to costs involved. I have been approved for the 1st three infusions which are given in weeks 0, 2, and then 6. After which they will re-asses and apply for more.
I have pasted the link below for anyone who wants to read more about what is Sarcoidosis a disease which today is still being researched worldwide due to its many complexities.
https://en.wikipedia.org/wiki/Sarcoidosis
Unfortunately last weekend we were hit by a 1 in 50 year storm which caused flooding through our Dining Room and Lounge. We now will have to wait for builders to get repairs done hopefully early in the New Year.
If you feel that you would like to assist financially in helping me beat this disease I will be eternally grateful. It is not easy to say this because I as always taught by my Dad that you provide for your family and you are there to care for them.
It is a fight I will win and I have a purpose to succeed for MY Family
Thank You
David
September 2015 I had a persistent cough which I could not clear. Finally after a number of test I was sent to a Lung Specialist who had more tests done including CT scan, and discovered I had an Immune Disease called Sarcoidosis.
We were shocked, my wife Tracey and I had no idea what it was or what it all meant. My specialist assured us that it was treatable and all would be ok.
This disease will impact any Organ in the body including Eyes, Heart, Lungs, Kidneys, Liver, Skin and Lymph Nodes. But in 90% of cases it will not even require treatment. Well I appear to fall in the last 10% probably 5% once you read on. Currently I have it in my Eyes, Heart, Lungs, Nervous System, and Lymph Nodes
18th December 2015 I was hospitalised because it was discovered that I had it in my Left Heart chamber and things suddenly became very serious, if left untreated death was a big possibility from instant heart failure. I had a Defibrillator Pacemaker inserted and it sole purpose is to ensure that my heart restarts if needed. Life Insurance they call it.
Moving into 2016 things were progressing ok but it was evident so was the Sarcoidosis. After a PET/Scan in April it showed reasonable good news in that things had settled down. June I was again in Hospital due to getting Pneumonia bug called PCP. November back to hospital again when it was discovered that the disease had become very aggressive and Lymphoma was suspected to be the cause. We are 90% in the clear with the Lymphoma but treatments were not working and I was advised by my Medical Specialist that I needed to take time away from work to allow my body to get the rest and fix needed to beat this disease. I am struggling to breath, I get dizzy and have excessive weight gain brought on by the medications.
The road so far has been very hard and financially draining on savings because whilst you have all the Health cover possible clearly out of pocket gap expenses plus drugs etc... Has seen a drain of around $8,000 dollars.
This will be on going as now I am taking time from work, (who have been fantastic) on unpaid leave to try and rebuild my strength and get back to doing what is required to full fill my role in the work place.
I start a new treatment today it is hoped will reverse things and put the Sarcoidosis into remission giving my quality of life back. It is very expensive and is administered through Infusions which require Out Patient appointments, and is only administered through the Public system where you have to apply for the Drug due to costs involved. I have been approved for the 1st three infusions which are given in weeks 0, 2, and then 6. After which they will re-asses and apply for more.
I have pasted the link below for anyone who wants to read more about what is Sarcoidosis a disease which today is still being researched worldwide due to its many complexities.
https://en.wikipedia.org/wiki/Sarcoidosis
Unfortunately last weekend we were hit by a 1 in 50 year storm which caused flooding through our Dining Room and Lounge. We now will have to wait for builders to get repairs done hopefully early in the New Year.
If you feel that you would like to assist financially in helping me beat this disease I will be eternally grateful. It is not easy to say this because I as always taught by my Dad that you provide for your family and you are there to care for them.
It is a fight I will win and I have a purpose to succeed for MY Family
Thank You
David
Organizer
David Bond
Organizer
Petrie Terrace QLD
