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My "first baby" needs our help

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My niece Diana was my first baby. I was about 8 when she was born and it was love at first sight. She was the sweetest, cutest baby! I'm now 51 and she's in her early 40s but I still see that adorable little baby when I look at her.
A few years ago she was diagnosed with PLS, Primary lateral sclerosis. This is how the Mayo clinic describes this horrible disease: "(PLS) causes weakness in your voluntary muscles, such as those you use to control your legs, arms and tongue. Primary lateral sclerosis is a type of motor neuron disease that causes muscle nerve cells to slowly break down, causing weakness."
This disease mimics and is treated in the same manner as  ALS.
But no formal description will ever capture reality.
That reality is that she has never been able to lift her twin baby daughters. She can't run and play with her four kids or be the kind of mom she always lived to be. Diana is a natural parent. Her four children are her heart and soul. Despite this disease she has pushed herself to give them as normal a life as possible. She's more engaged than many perfectly healthy people who have families. Everything is for the kids.  Holidays  and birthdays are special and all their needs physically and emotionally are met.
Diana and her husband run a non -profit for at-risk kids near Baltimore. Diana and Chris had done everything right. Worked hard, bought a house, had kids.  Dedicated themselves to family. Then this happened.
The disease is taking its toll physically and emotionally on the entire family. Diana uses a walker.  Slowly. Some days she can't tie her shoes. Her breathing is sometimes shallow and small tasks can be daunting and frustrating.
Life is rarely fair and in some cases fate is cruel. Despite that, she still puts her children's needs ahead of her own.
Diana and her husband Chris don't qualify for any assistance. The hospital bills will be upwards of $10,000. And growing.  
So, I need your help. We have no idea what the future holds. I want to raise funds so they can focus on the present and make the most of every minute. Diana can't even hang
out in their back yard with her children because she can't get down the back steps and a modified deck isn't in their budget by any stretch of the imagination. Small things we take granted, the list is immense.  No one should have to live in this type of confinement or miss out on the joys of being a parent.
Please help.
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Donations 

  • Colleen & Phil Anthony
    • $100
    • 8 yrs
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Organizer and beneficiary

Cynthia Greco
Organizer
Hanover, PA
Marlene Bishop
Beneficiary

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