John Hudson is a friend of ours. He suffers from a rare, genetic and terminal skin disease called Epidermolysis Bullosa (EB). EB presents as blister and wounds, equivalent to second and third degree burns which cover 80% of his body, both internally and externally. As a result, John Hudson is covered in bandages daily, from head to toe, to both address his existing wounds and to protect his skin from trauma and new wounds.
John Hudson is now 15 years old, his care is managed from Cincinnati Children’s Hospital, where he visits throughout the year for esophageal dilatations, whirlpools and to see a team of specialists who know EB. He also receives monthly transfusions to keep his iron and hemoglobin levels up, and has not been back to school since he graduated 8th grade two years ago.
He is also lined up to participate in a clinical trial in gene therapy at Stanford University this year, which we are all very excited and hopeful for.
Please visit the video below so that JH can better explain life with EB and what his days are like.
Thank you for your support and prayers.