Dylan Reains fund

Hi, Dylan turned 13 last week on 14th Jan 2016 
Dylan has numerous health problems
Spina bifida. Paralysed from t10 cannot walk or stand.
He has hydrocephalus. Slit ventricle syndrome. Chairi malformation. Neuropathic bowel & bladder. Brittle bones of legs. And currently undergoing assessment for sensory/ behavior problems.

Dylan has been through so much and going through 76 operations with more in pipeline.
Past few years has been extremely rough for Dylan and has spent so much time in hospital.

I know he is my son and I'm biased but I truly believe he one most inspirational people I know.
He is a cheeky charmer and touches everyone's heart.
He likes to tell it like it is.
Past few years this page  has helped us achieve a lot, we now have adapted vehicle which Dylan can get in & out independently.
Most recently thanks to wonderful charity Dylan has now got bike.
fundraising has helped Dylan go his dream holiday to Florida and most recently the purchase of custom made wheelchair 

Anyone who knows Dylan's story will probably know how much of a fighter he is!
the reason Dylan's fund is ongoing as he constantly needs help with things
the costs of raising a child with a severe disability is crazy
once Dylan is well enough we want try find suitable chair for home that he can sit in and be comfy as his spine and sitting ability is becoming worse.

we also want private Assesment of dylans emotional & sensory needs as we have tried nhs for years and got no where with this.
also it be great to be able to have money aside to help with costs when he in hospital & also to be able to have fun family days out to make up for special occasions he misses due poor health.
I would appreciate if my friends could share this page and share Dylan's story
Thank you
❤️