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Fighting Cancer. Spreading Love. JAXON

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Instagram: @Jaxonjamesjourney Donations will go directly towards making Jaxon smile. The target will keep rising and we would like to keep supporting all the parties involved in Jaxons journey. For 2 years Jaxon has touched the heart of people far and wide. We as parents have been so humbled by the support and amazing nature of humans from all corners of the globe. We want to give the opportunity to those who Jaxon has touched, moved or inspired to impact Jaxons journey directly. Prayers and positive energy is the most important thing to share. Please tell your loved ones what they mean to you at every opportunity. Jaxon was diagnosed with PMMTI in June 2018 - he was 7 months old. We spent 9 months in Alder hey hospital, having treatment, exploring options and meeting his nutritional needs. His tumour is very large and in his abdomen so he has never been able to eat (the pressure on his stomach meant it resulted in immediate vomiting). In November 2018, he stopped tolerating large volumes of breast milk. Various (traumatic) attempts were made to insert NG and NJ tubes but Jaxon pulled them out and found them distressing. Since then he has been fed through his central line. In respect of treatment, he's had various combinations of chemotherapy but they weren't successful. Both Alder Hey and GOSH considered surgery but deemed it inoperable as the tumour surrounds main arteries and it would be too risky. In March 2019, Jaxon started a clinical trial at Manchester Children's Hospital and this definitely had a positive effect, in that it slowed the rate of growth. I was trained to give Jaxon the IV nutrition so we were able to leave hospital in March - around the time he started the clinical trial. He made so much progress. Having vomited violently every day for 9 months, it suddenly stopped. He started trying foods too. He wasn't able to roll over but began moving around the floor very well. In December 2019, we noticed a lump on Jaxon's forehead. After some investigation, it was concluded that Jaxon's cancer had metastatised, with lesions on his skull, spine and liver. We looked at other trials, however, Jaxon contracted chicken pox and has not been well enough for treatment. Jaxon is a beautiful soul who brings joy to everyone he meets. Affectionate, fun, bright, strong-willed and inquisitive. His ability to recover from bouts of ill health and treatment has astounded me. He looks to enjoy every moment and we are truly blessed.
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Donations 

  • edward richards
    • £50 
    • 3 yrs
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Organizer and beneficiary

Jaxon Preston Watts
Organizer
Susannah Watts
Beneficiary

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