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Team Zep! Supporting a Full & Happy Life With DMD

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In September 2019 our family was devastated by the news that our gorgeous boy Zeppelin has a genetic condition called Duchenne Muscular Dystrophy. He is 4 years old.

DMD is a degenerative muscle wasting disease which affects mainly boys. It currently impacts Zeps running, jumping, speech and balance. It will eventually affect all of the muscles in his body and will rob him of his         ability to walk, eat and breathe on his own. One day it will reach his heart.


Many beautiful friends have chosen Zep and our family as their sponsorship cause, to raise money to improve  his quality of life now and in the future. Every penny raised by this page will go directly into things that will make his life   and our ability to care for him that bit easier. House adaptations, an appropriate car, an electric wheelchair  and anything else he may need. These necessities cost a lot of money and are only partly funded by the local authority. The rest we have to find ourselves.

Our first hurdle is our home. In the next two years we will need to move house and make a home that is            completely adaptable for Zeppelin to move around safely and independently. The expense of this is  overwhelming.

For a parent, there is no pain like the pain which comes with a diagnosis like this. We hope for a cure with        everything that we have, but in the meantime we just want to make his life wonderful. We have to move  forward with strength for Zep and his little sister Indiana. We need to make their lives full and happy.  And we need your help.

So if you can spare a few of your hard earned pounds and sponsor Team Zep, we would be forever grateful.   Any money that isn't needed for Zep will be donated to Duchenne UK, the leading charity funding research     for a cure. You can find out more about Duchenne Muscular Dystrophy and the amazing work that Duchenne UK do for boys like Zep at www.duchenneuk.org

Organizer

Emma Petre
Organizer

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