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Raise Money For Louie

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Hello, I am Louie’s mum. Louie is almost two, he will be two in October. Louie loves animals, he loves to paint, he loves to cook, he loves to tidy (almost everything but his toys!). Louie is adventurous, he loves to run around and sometimes you wouldn’t even believe he was unwell. Well let me tell you why we are raising money for my little boy. Louie was premature and he had jaundice which did go! When he was baby he had little seizures and chocking episodes on his sick! they put it down to reflux! He wouldn’t gain weight, and yes I got accused of not feeding my own child and social services got involved but I proved them all wrong! Nobody would find out why he wouldn’t drink his milk, why he was losing weight and chocking! Louie behaviour has always been different, I thought it was a normal baby behaviour, he wouldn’t sit up till 9 months, he wouldn’t crawl till 12 months, he wouldn’t stand still 13 months and didn’t walk till 15 months! He can only say mamma, that’s it. He hits himself, throws himself of the sofa, he bangs his head on anything hard, doesn’t like to sleep! It was only till November/December 2018 I realised something, Louie had a hard lump on his head! I thought it was because he hurts himself but I took him to the hospital and that’s when he got the diagnosis, ‘metopic craniosynostosis’ ! The condition is very rare but Craniosynostosis is known to be a cause of increased intracranial pressure and children with one prematurely fused suture. I went to Birmingham children hospital after the diagnosis and they one mentioned a operation and the other one said we’ll see how he is in a few years. I trusted them. Now it’s August 2019! My baby. My Louie has recent had a lot of seizures, more than a baby can handle! They think it’s either because of this head condition or my son has epilepsy. We are waiting for more appointments and referrals. Any help what so ever would be so greatful. From me and Louie. We just want a speedy recovery. Thank you!

Organizer and beneficiary

Alicia H
Organizer
Martin Harrold
Beneficiary

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