Help Me Fight Stage III Hidradenitus

I have been battling the most severe and advanced form of HS (hidratenitus suppurativa) for 20 years now. In its advanced stages, HS causes severe chronic pain, unimaginable acute pain, embarrassment, social stigma, depression, and other serious medical issues resulting from cysts that can grow to the size of footballs. It requires constant and expensive maintenance and often surgery. While disability and Medicare cover many expenses, they are not nearly enough to allow me to remain living independantly in my own home...the only place I can be comfortable and cared for as I wage a permanent battle against a destructive and degenerative disease with no known cause or cure. Help me remain in my home while getting the medical care I need.