Hope for Nicholas

Hope for Nicholas... He is a miracle in all sense of the word!  He has just turned eight months old and has had to endure a lot in his short time, and yet he has done it all with a smile on his face.  He was diagnoised with a very rare genetic mucle disease called X-Linked Myotubular Myopathy.  This disease makes it hard for Nick to move or even hold up his head.  It also affects his breathing and his ability to swallow.  He is fed thru a tube in his stomach.  The outcome at first for this disease was very doom and gloom he was not expected to make it out of the hospital.  We have had many trips back to the hospital because of his breathing issues but have always returned home.  We are in hope for some medical equipment that Nick will need now and througout his life.  We are in need of a tumbleform chair so that he will be able to sit and see the world and hopefully gain head control.  We are also in need of a zip zach chair when he is a little bit older to get mobility around the house.  We are going to use this money only for Nick we are hoping to pay off some of the medical bills that will only get bigger as Nick does.  We are a regular family with no pre warning that Nick was going to have this condition.  We as parents just like every other parent just want to provide our child with the best equipment to give him a fair chance at having a normal quality of life.  He is our miracle and if you would like to follow his journey please go the the caring bridge website nicholasrocheford to follow and learn about updates.  We thank you in advance and that will never be enough for giving us peace of mind for providing for our little miracle. Thanks Jamie and Bryan Rocheford