Jeremy is 1 per 1,000,000 to be diagnosed with PNH and the only one in the state of Utah. There is a lifesaving treatment. It costs $400,000 per year, and any help you could offer would go a long way.
How it all began: Over the past 16 months Jeremy, the father of 4, has been struggling with several health issues. Starting in December of 2016, he was awoken in the middle of the night feeling as though he was having a heart attack. His wife Diana rushed him to the hospital where it was determined it was not a heart attack but a reaction his body was having to extremely low platelet levels. Jeremy then began having to go to the hospital every week for doctor's appointments to see Hematologists, Immunologists, and other specialists no one could determine what exactly was wrong. Doctors had never seen this before.
Doctors put him on steroids, antibiotics and a full cocktail of medications. Jeremy was trying to have some semblance of a life and began preparing to run a half-marathon. However, he felt like he couldn't get enough oxygen when he would run. He had another blood test and the doctors called him shortly after and told him that his red, white blood cells and platelet levels were far too low. Things had gotten worse. At this point the specialists needed to rule out cancer, so he had a bone marrow biopsy. Fortunately, Jeremy didn't have cancer but his cell levels continued to drop. This would begin an ongoing fight to determine what was going on within his body because doctors and specialists couldn't figure out what was going on.
In October 2017, Jeremy was admitted to the hospital again, but this time because he was in desperate need of lifesaving blood transfusions. This time echo cardiograms, ultrasounds, x-rays, more blood tests and another bone marrow biopsy. The determined specialists of the specialists finally found the answer...PNH (Paroxysmal Nocturnal Hemoglobinuria) and Hashimotos.
Jeremy has been diagnosed with PNH which effects 1 in 1,000,000 individuals and along with Hashimoto's disease, Jeremy is the only one in the state of Utah to have both.
Jeremy's current treatment consists of a specialized IV therapy every other week which he will do for the remainder of his life. Last year's expenses as well as this years upcoming expenses are tremendous. Fortunately, insurance covers the cost of the $400,000 a year treatment but the deductibles and copays have added up to more than $12,000 and continue to climb. Anything you can do will go along way to help Jeremy and his family.
Jeremy's wife and four children have missed having their active and healthy Dad this past year and they are looking forward to a better future with him. Any help you can offer Jeremy, Diana, Gracie, Ryan, Cody and Tyler would be life-changing!
- Emily McQueen
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