This is our hero Cameron Ryan Marsh, nine months ago he was diagnosed with the terminal illness called Adrenoleukodystrophy, also known as ALD. It is a rare genetic brain disorder that only happens to 1 out of 17,000 little boys in between the ages of 4 and 8. Before he was sick, he liked to go to school, play video games, Legos Star Wars was his favorite. He also loved playing outside with his siblings, loved swimming and many of the other things kids love to do.
Since being diagnosed Cameron has currently lost vision, hearing, sense of balance, and most motor skills, and is unable to speak. His mother and loved ones have learned all of his needs by training each other, they've guided each other through his journey. When Cameron was diagnosed, the doctors told his mother she needed to take him out of school because with the illness his adrenal system shuts down and he doesn't have the immunity to protect him from viruses. His mom was working two jobs to support the family but had to quit both of them in order to take care of her son Cameron because he needs 24/7 care.
Throughout this horrific journey Camerons mother and siblings still try to continue making memories with him, but due to his mother being unable to work, funds are very limited. The more the illness progresses, the more abilities Cameron will lose, and the more equipment he will need. The donations will be used to cover expenses not covered by insurance and for funeral expenses.
For more information on this rare genetic disorder you can go to http://www.littlewarriorsaldawareness.blogspot.com/p/what-is-ald.html
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