Ed Port man From TLC's My Gaint Face Tumor Nf making neurofibromas personal

Hello Everyone I am Ed Port of Youngstown Ohio USA I am fighting NF Also known as Neurofibromatosis. You may have seen me from the TLC program that aired here in the US on Oct 17 2012 called My Giant Face Tumor. I know from the blogs that I have read on the net a lot of people did not like the title. It was not my choice but maybe it got a lot of people to watch and learn about NF. Since taping for the program ended I have had a 3rd operaton that I still owe on to all the Drs & I have a 4th operation coming up on 11-29-12 back at St Joseph Hospital in Chicago IL. You can see a video clip from my 1st operation above thats on youtube. You can also go to my website to see other interviews that I did, but just some of them @www.edneedsamiracle.com The Dr tells me that there will be up to least six operations just on my face with the 5th and 6th being in 2013. Some people have asked if I was paid for any of my stories by the media as of now, no, but the newspaper interviews and the interview I did with CNN News to Me program HLN & Fox news 8 in Cleveland Ohio along with dinners that where held for me did being in gifts which helped pay for the 1st and 2nd operations and the travel expenses. I am not 100% sure what the 4th operation will cost but based on the others this will pay what I still owe to the Drs from the 3rd operation and it should cover the 4th based on the Drs discounts that they gave me before and this just the Drs. What ever you can do to help will be wounderful Thank You. Ed Port of www.edneedsamiracle.com and The TLC program My Giant Face Tumor.


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