My name is Robyn. In November 2011, I was diagnosed with Chronic Lyme Disease. Lyme is an under diagnosed, under funded disease whose dedicated Lyme literate doctors fight tooth and nail to continue their research to find the best and most effective treatments.
This past November due to my wonderful donors, I was able to attend The International Lyme And Associated Diseases Society (ILADS), conference in Boston that had the latest information available on research and treatment. I was able to receive information first hand, most beneficial in fighting my fight. I began treatment, having no idea the path I would find myself on, and now I have become aware of leading doctors in the field and switched to a new practice located in Washington, DC and I believe I am getting the best care possible. With this new start I have an even better understanding for me to continue to remain educated in this complex process, and to continue to help educate others as well.
I want to thank those who continue to support me with the education of myself and others through my website, as well as with my battle against Lyme disease. During the conference I learned of highly recommended IV treatments that cost upwards of $35,000, nerve tests that run $7,000 and several other treatments and diet plans not covered by insurance that burden both doctors and patients. I have been on a restricted diet from the point of diagnosis and have recently been prescribed an IV antibiotic regimen. Currently have not needed continued extensive testing; I am embarking on a difficult and expensive road to remission. The continued donated funds will be used to help cover my expensive medical costs as well as be put towards continued Lyme education for myself and the up keep of my web site so I can help educate others.
Since returning from the conference I have been working on a website "Living with Lyme the Smart Way." This website will help others who are fighting Lyme to keep focused, keep educated and stay strong while continuing to LIVE their lives through treatment. Some of the things I include are: ways to continue staying involved in as much of everyday life prior to treatment as possible, providing recipes for the varying Lyme friendly diets, a "how to" section helping patients solve not so every day problems such as "How do I shower with a central line?" In the "managing medication" section I also include several tips (i.e. ways to remember pills and organize at home medical treatments). You can find my at:
Thank-you all again for your love and support,
- Greg Wood
- Meghan Anderson
- Chris and Mo
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