All In For Ethan

Principal Lieggi from Ames Elementary School (Ethan's school) is running the 2012 Chicago Marathon for the All In For Ethan Foundation.  The All In For Ethan Foundation provides quality of life grants to families who care for children with Giant Axonal Neuropathy (GAN). GAN is a recessively inherited condition that results in progressive nerve death. GAN often appears in early childhood and progresses slowly as neural injury becomes more severe. Children, like Ethan, who are diagnosed with the disease have a life expectancy no longer than their early twenties.   I ask that you show your support for Ethan and other children with GAN by donating to All In For Ethan.