Project Cross The World To See Dad
Donation protected
After about 3 years of the unknown, my father, Jamie, has recently been
diagnosed with MSA-C at the young age of 61. This stands for Multiple
Systems Atrophy - Cerebellar. He has lost fine motor skills, has much
trouble walking, balancing, holding cups, has slurred and slowed speech,
cannot write and is now on full disability. He cannot do his passion in
life: play the piano. This neurodegenerative brain disorder is
extremely rare, and without the knowledge of cause, there is nothing out
there to help with symptoms nor slow it down. We don't know exactly
what the future holds and how quickly it will progress, so now is the
time to be with him as much as possible. Here's the clincher, my dad
lives all the way in Sydney, Australia; the place where I was born. For
obvious reasons - money, and being half way across the world - it has
been a usual two year interval between visits. Sometimes even 5. Dad can
no longer work and has very low funds due to his inability to work, I'm
a struggling dancer myself who dances for joy and not the money, and my
brother, Sam, is a student getting his PhD in engineering physics. My
mother has been trying to help as much as possible, but as a self
employed Licensed Massage Therapist, who works with many people with
chronic pain who desperately need her treatment, she has not much to
offer anymore. Everything went to my ballet training and Sam's college
education. This two years between visits can't go on. Sam and I need
your help to travel to Australia to see our father at least once a year.
Or maybe somehow meet in the middle for a holiday on neutral grounds
that is stress free on both sides - for my father to get away, and for
us all to enjoy our time together. The latter idea is of course only if
my father is able to travel. Dad may be in a wheelchair soon, but the
timing of this degeneration is hard to say. Eventually he may lose all
forms of communication and will be bedridden. It will lead to something
I'd really rather not put in to so many words. I don't want to think
about that yet. It's about here and now, and seeing Dad is most
important. Anything you can do will help. Thanks for everyone's support.
Organizer
Elice McKinley
Organizer