It’s taken over 7 years since Avery’s death for us to be able to write this – the words flowed so freely when Avery was alive – they disappeared when she physically left our side. DNA is a crazy thing – because of it, your child might be born with blonde hair and blue eyes, brown hair and green eyes, or quite possibly they’ll be born with a debilitating genetic disease such as Spinal Muscular Atrophy (SMA) – the #1 genetic cause of death for infants.  Our daughter Avery was born with SMA on Nov 11, 2011 and she passed away due to SMA on April 30, 2012.  Avery was only 5.5 months old at the time of her death, but she garnered worldwide attention via her blog, Avery’s Bucket List.  Avery inspired us and countless others while bringing much needed awareness and funding towards fast-tracking a promising and potential cure for SMA (see: Zolgensma).  We are often left wondering what Avery's life would have looked like had she made it to her 1st birthday and beyond.  How many more smiles, snuggles, and other joyous moments would we have shared together?  How many more people would Avery have taught about SMA and the fact that approx. 1 in 50 people is a genetic carrier for it?  Who else might Avery have helped to ask their doctor questions and learn more about their genetic makeup?  And who else's life, aside from ours, might Avery have impacted for the better?


August is SMA Awareness Month and we are hoping Avery’s magical luster still shines bright in all of us and will inspire you to help Cure SMA.  This is why we are asking you to: DONATE $11 or any amount you are comfortable donating to help Cure SMA.* NOMINATE 11 of your friends by e-mail, text, or tagging them on social media and ask them to do the same while we all... ADVOCATE for awareness for SMA and other neuromuscular disorders by sharing this publicly. 


*Your donation is going to help Cure SMA, a 501(c)(3) charitable organization and is tax deductible.


Why $11, 11 nominations, and a goal of $111,111?  Avery’s birthday (Nov. 11th, 2011) of course.  Haven’t been nominated?  No need to wait; nominate yourself by donating and then nominating 11 others to do the same!  Can’t afford to donate?  Don’t let that stop you from nominating others and advocating to help Cure SMA by sharing this – you never know what impact your sharing this might have on someone else. Thank you.  Thank Avery. -Avery's Mom &amp; Dad- Link to Avery's Bucket List - <a href="http://averysbucketlist.org/"><a href="http://averysbucketlist.org/" target="_blank" class="" rel="nofollow noopener noreferrer">http://averysbucketlist.org/</a></a> Link to Cure SMA - <a href="http://www.curesma.org/"><a href="http://www.curesma.org/" target="_blank" class="" rel="nofollow noopener noreferrer">http://www.curesma.org/</a></a> - Cure SMA is dedicated to the treatment and cure of spinal muscular atrophy (SMA), the number one genetic cause of death for infants. We fund groundbreaking research and provide families the support they need for today. #1111challenge #DNA2CureSMA #DNAtoCureSMA #doitforAvery

Whitley Levy

Anonymous

Matthew Brown

Lisbeth Ceballos

Matt  Wright

Amy Cohen

Rachel Pasternak

denise herrera

Mary King

Arsene GANGAMA

Jill  Rifkin 

Lindsey Carlblom

Alexi Alvis

Stewart Hill

Brandon Resendez

Mandi Cassens 

Annette Schmidt

George @ Joyce Dayhoff

Steve Warde

Avery's Bucket List - 1111 Challenge

platform

Platform is iOS

Android

Adyen Google Pay Development Audience

$opt_dummy_attribute

English only

Deprecate Stripe Legacy

dyn_template_ids

Adyen V6 Bene Transfer & MyMoney Campaign Organizers - test01

Bene transfer V6 and AdyenV6MyMoney Campaign Organizers - production

OneTrust next-app audience

fundCountryCode

NextDoor Share Option Users

Fundraisers with Reactions feature capability

fundCurrencyCode

US + Non-charity COs Only

locale

fund country is US and user language is English

personId

comms-internal-person-ids

Enhanced Story Experience Users

Suggested Goal Experience Users

user language is English and fund country: US, AU, DK, FI, IE, NO, SE, CA, GB; 

Poster share - new funds eligible (newest 9/18)

Streaming widgets beta user

paymentProcessor

3DS payment method

user language is English and fundCountry: US, AU, DK, FI, IE, NO, SE, CA, GB; 

GoFundMe Employees

ipAddress

Mark Rieth IP Address

Version 9.2.0 and above

Fund is in English speaking country

desktop

Android v12.11.0 and above

Platform is Android

paymentMethodType

checkoutType

Payment method type group to be vaulted on success

admin pr kit prod

EUR Donation Upsell

Share Text generation Skip Fundraiser

(prod) new funds eligible for amp12 (UGC gallery)

fintrac_cad_idv_form_v2 audience

paymentProcessorAccountId

fallback mode accounts

proCampaignId

p2p legacy startfundraising page

AMP24 New Funds Only PROD (DO NOT MODIFY)

countryCode

charityId

UKCharities

Federated Search Internal Testing

route.pathname community

US Donation Upsell audience 

Auto Thanks Feature Audience

Supporter Comments Eligible Funds

International Only

fundId

braze fundraiser group 

Payment Identity Transfers ATO Risk Check (Targeted) - Production

Fundraiser Saved Payment Method Rate Limit Bypass (Production)

leaderboard-partner-id-audience-givepanel

Version 9.2.1 and above

AUD Donation Upsell audience

fundraiserCountryCode is US/EN

Active Fundraiser - Smart Default Cadence

DAF Internal

Vault on success card payment method

Platform is iOS v11.0.0 and above

Desktop users

Person ids

United States (US) users

allow yuno fundraisers for test

Mexico country code

Posters INTL

NPO Profile Opted-In

iOS at or above 12.4.0

non-US recurring donors

Canada Campaign Owner Group

Fundraiser Without Meta Link

Scheduler payment tester gorup

charityCommunityId

Charities allow to be claimed unclaimed (PRD)

Canada (CA) users

currencyCode

UC Tipping v20250115 International

pymk_production_xplr_fe_team

Android at or above 12.2.0

Profile photo entry point audience

smart goals (fundraiser/manage) on test01

Activity Tracking v1 Beta Testing

writePath

Stream Notification

start gfm intl allowed locales

Platform is iOS v11.2.0 and above

unclaimed charities

prod_ach_audience

AI Chatbot Audience

amp13 only new funds (prod) (anyword auto)

UC Flow Enabled (Prod)

Payment Identity Beneficiary Verification - Production

shared notification bell audience

Custom users

ach frontend audience

Android v11.0.0 and above

Users Receiving Payments Paused Notifications

smart goals test01

Manage Coach - US English Organizers Only + new funds only

Team EGG - IP Address list

Fundraiser Without Instagram Deep Link

Native 11.4.0 and above

UC Tipping v20250107

Users Receiving Braze KYC Validation Failed

Native 11.3.0 and above

Influencer - Prod

US fundraisers and US users

ai_title_page

anyword

openai

control

manual_entry

userEmail

template_id

userId

fundUrl

isCharityCo

email

appVersion

shouldBucketIntoExperiment

partnerId

donationCadence

isActiveFundraiser

isPartner

isMobile

npoProfileOptIn

fundIsLinkedWithMeta

hasSessionDonation

isCampaignOwner

fundHasInstagramDeepLink

Native 11.4.0 and higher

New funds eligible - Video Sharing (PROD)

GB Donation Upsell audience 

Auto Thanks V3 Rollout Audience

Thank you V3 testing whitelist

isRecurringFriendly

Is Recurring Friendly

Excluded funds - Video Sharing

Logged In Users

CH Donation Upsell audience

Android v10.6.0 and above

userCurrencyCode

Localized Currency

v11.5.0 and above

testAudience

pathname

Survicate

appVersion is at or above 12.8.0

Non-charity fund

isChallengeFundraiser

challenge-fundraisers

Payment Identity Launch Verification - Production

New funds eligible - Posters v2

CAD Donation Upsell Audience

Braze Email Tester

NPO Profile Opted-Out

iOS App Version

hasKnownDonors

PYMK has donors

iOS v12.3.0 and above

Avery's Bucket List - 1111 Challenge

Still $107,146 to go. Help us build momentum.