Rylee's Race

Alstrom Syndrome International is having there 7th family conference, medical research clinic, and scientific symposium in Plymouth, Massachusetts on May 9-13, 2013.  Will you please help us raise money so we can attend? Rylee is 1 out of about 800 cases known worldwide.

 

Meetings: International Conferences make it possible for families, care givers, and professionals to hear current information on Alstrom Syndrome presented by Alstrom Syndrome experts. A great opportunity to meet and socialize with others.

 

Alstrom Syndrome is a rare, multisystemic genetic disorder exibiting cone-rod dystrophy(early nystagmus, blindness), hearing loss, obesity, insulin resistance and hyperinsulinemia, type 2 diabetes mellitus, dilated cardiomyopathy, and progressive hepatic and renal dysfunction.

 

Alstrom Syndrome is an autosomal recessive, single gene disorder caused by mutations in ALMS1 (Chr2p13), a novel gene of currently unknown molecular.

 

Donations

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  • James Benton 
    • $300 
    • 102 mos
  • Anonymous 
    • $50 
    • 102 mos
  • Melissa Tatum 
    • $100 
    • 102 mos
  • Susan Bocconcelli-Cargill 
    • $25 
    • 102 mos
  • Nick, Stephanie, Cole and Sarah Landes 
    • $250 
    • 103 mos
See all

Organizer

Kerrie Kokenzie Landes 
Organizer
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