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Help Nikki Kiss Cancer Good-Bye!!!

$10,708 of $15,000 goal

Raised by 108 people in 14 months
You never think “it’s”gonna happen to you... till it does. Everyone’s “it” is different.... maybe it’s the positive pregnancy test, or the acceptance letter into your dream job... maybe your “it” is the passing of a close family member, or a breathtaking medical diagnosis. Whatever “it” is for you... we all have an it, and in those moments we realize that they will be defining points of reference in our life. 
My “it”... is
Mesenchymal Chondrosarcoma. 
Its a very rare and very aggressive subtype of Bone Cancer. I was diagnosed in July of 2009 with this rare tumor in my right sinus cavity.
I had 6 months of aggressive chemo,
2 surgeries and  several blood transfusions .... but in the end, with the help of friends, family and even my HS classmates....  I beat it.
ive spent the last 7 1/2 years Cancer free and loving life. I’ve traveled, I’ve loved and I’ve done it all with a new founded appreciation that I took from that experience. 
In October of 2017 my love, Kris Roehrig and I set sail for St John USVI with hopes of building a wood shop to help the restoration process after the hurricanes. It’s been difficult but we have worked hard and have been blessed with success in that endeavor and have created a very comfortable life here. We have a duck named Goose, a pup Bodie, and a black kitty, Tiki.... and of course each other.
It’s quite the little dream come true....but then there’s that “it”.

Like I said, you never think it’s gonna happen to you... until it does. I started having sinus issues in December 2017 which I attributed to the common cold, dust and molds. They are abundant here.  Then it got worse and worse.  The beginning of May 2018, just a few weeks ago, the right side of my nose became completely closed off, no air flow at all now with persistent sinus infection and  sparatic unwarrented nose bleeds.  
We paid out of pocket for a CT, which revealed an almost 3cm around tumor in my nasopharyngeal cavity that is eroding the bone on my right side sinus and 2 other separate growths on pterygoid plates.. needless to say, it isn’t good. 
We are turning over every stone to get insurance set up and money lined up for the flights it’ll take to get to a hospital stateside. But currently we don’t have insurace and so we are having to go through an elongated process to try and get financial help in that lieu of time so that I can get to a dr. Our plan is to get to Moffitt Cancer Center in Tampa as Kris has family there that can help with a place to stay while I receive treatment.
Everyday is precious as this tumor is actively growing bigger even as I sit typing this. 
Kris n I are helpers, we are givers, so asking for help financially is difficult for us both, but at this point our backs are against a wall. Any donation will be used for medical expenses and it will be greatly appreciated by me and my family. Thank you in advance for your time, thoughts, prayers and if possible a donation. God Bless.
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8-7-18
2nd Surgery Post Op ....Chemo/ Radiation Consult

Soooo... I went to the Dr today for my post op from my second surgery and to meet with the Oncologist and Radiologist to discuss my treatment options. He laid out my options for me and we settled on one called VIT. It’s basically the first letter of the 3 chemo I’ll be taking. I will have a port placed due to the burning properties of one of the drugs, but that’s good by me as it makes for less painful access points. He wants to do 6 rounds as long as my health holds up for that. Each round will be 5 days long and will take about 2 1/2 hours to administer. Then there will be a 2 week recovery period and on the 3rd week it will start the next round. We have set a tentative date of July 28 to start... tho that date can be moved if I get sick etc. if we Start the end of July/beg of sept then I should be done in time to enjoy Christmas. This set of chemo drugs will be different from last time but many of the side effects are the same. My hair will fall out, and other typical side effects for these particular drugs are severe diarrhea, nausea, intense itching, abdominal cramps and of course fatigue. So... about what you’d expect.
As for the radiation... we don’t have much info other than it’s strongly suggested. The radiologist need to talk more with my ENT before they can further discuss exact treatment options and their panel meets on Wed and Thurs so I’ll have a phone consult with him later this week.
My ENT dr looked me over.... asked me about my pain levels n such. He worked on my ear a bit as it has felt blocked. He was able to get the blockage out but there is still enough internal swelling that it’s affecting inner ear. It’s causing some intense headaches and dizziness but he hopes as the swelling goes away so will those symptoms. He prescribed me an antibiotic with steroids to help that to heal.
So for the time being I’m just still recovering and waiting for the next phase. As of now, Aug 28 will be my start date for chemo and if I do radiation that will be done simultaneously.
Thank everyone for the continued thoughts prayers and monetary donations. It has all been so crucial in making this possible. If anyone is around Key West on Aug 16 please come to Mary Ellen’s Bar downtown and have a drink with us. We’d love to give everyone a huge hug.
Stay Salty and Blessed
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Oncologist (chemo doc). He laid out my options for me and we settled on one called VIT. It’s basically the first letter of the 3 chemo I’ll be taking. I will have a port placed due to the burning properties of one of the drugs, but that’s good by me as it makes for less painful access points. He wants to do 6 rounds as long as my health holds up for that. Each round will be 5 days long and will take about 2 1/2 hours to administer. Then there will be a 2 week recovery period and on the 3rd week it will start the next round. We have set a tentative date of July 28 to start... tho that date can be moved if I get sick etc. if we Start the end of July/beg of sept then I should be done in time to enjoy Christmas. This set of chemo drugs will be different from last time but many of the side effects are the same. My hair will fall out, and other typical side effects for these particular drugs are severe diarrhea, nausea, intense itching, abdominal cramps and of course fatigue. So... about what you’d expect.
As for the radiation... we don’t have much info other than it’s strongly suggested. The radiologist need to talk more with my ENT before they can further discuss exact treatment options and their panel meets on Wed and Thurs so I’ll have a phone consult with him later this week.
My ENT dr looked me over.... asked me about my pain levels n such. He worked on my ear a bit as it has felt blocked. He was able to get the blockage out but there is still enough internal swelling that it’s affecting inner ear. It’s causing some intense headaches and dizziness but he hopes as the swelling goes away so will those symptoms. He prescribed me an antibiotic with steroids to help that to heal.
So for the time being I’m just still recovering and waiting for the next phase. As of now, Aug 28 will be my start date for chemo and if I do radiation that will be done simultaneously.
Thank everyone for the continued thoughts prayers and monetary donations. It has all been so crucial in making this possible. If anyone is around Key West on Aug 16 please come to Mary Ellen’s Bar downtown and have a drink with us. We’d love to give everyone a huge hug.
Stay Salty and Blessed
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So.... The ENT at Moffitt called yesterday morning and requested we come in Today (Friday). We questioned the urgency because the pathology on the biopsy hadn’t made it to the office at that point and our original appointment was for the 24th. The scheduling nurse said that he simply wanted to get a jump on things because the first surgery didn’t go as planned. So here we are in Tampa... sitting at Genghis Grill, mulling over the info we received. Can I just preface this with... “it sucks to be right sometimes “. Everyone who has been following this story knows that I was a bit uneasy with my drs laxidazical attitude toward my medical situation. Even after we shared the story of the last dr in 09 who misdiagnosed this the first go around, botched biopsy, spread to the lungs...and 6 months of chemo and another surgery later I was ok. But even through a detailed recollection of that drs overly laxness regarding my tumor.... this dr still remained very .... lest say confident not arrogant, that it was a slow tumor, very small (walnut size) and that he believed he could go in, scrape it out and then maybe radiation on the back side of it all.
But today held a much different attitude ...he came in very agreeable, the path report was in his hand.... it is Mesenchymal chondrosarcoma, (what I had before)... he had thought it was 2-3cm.... it was 8cm... it is inside the bones of my face, and the biopsy report does say it is highly malignant. He wants to cancel another surgery this Wednesday and go back in to get the rest. Said we could wait, if our travel plans to get back to STJ are important... but he suggest now. He wants to go ahead and set up appointments with the radiation and oncology/chemo teams to discuss what we can for after the surgery.
I’m glad he isn’t dragging his feet, it makes me more comfortable that he has realized that this is what it is.... but... I kinda hoped it’d be something different... almost anything different. I had told kris last week after the surgery that I anticipated that once he got his hands on that pathology report that we’d see a much more. Emergent active side to him because he’d realize what he just cut into..... and it’s exactly how it happened. Oh well.... it is what it is... so we are making a way for me to get this surgery this coming Wednesday, as the Dr wants.
The recovery of this surgery has been far more painful than the last but that’s to be expected with as much ick as they removed. This time around they will have to resect bone but still about the same recovery time and method to be expected. We are still figuring a few things out... but looks like I’ll be in St Pete area for a bit ... will update more later
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7-13-18 Biopsy/excision at Moffitt

A bit of a slow motion whirlwind... that is what this has all felt like. The surgery went well. Corby and his girlfriend Nomi drove up from Key West to visit. It was so good to see them, I haven’t seen corby since Jan when he broke his hip in 2 places.
I checked in at 9:45 and they took me back in less than 10 min. Did all the changing into a gown, iv, height, weight etc...and then we waited till almost 1pm when they got us back. But that’s ok...don’t want him rushing on me or anyone.
When the Dr came in we asked about the scans that had been taken on the prior day. He said that they found 6 spots in my lungs but they are small. The biggest one being .5cm and the smallest 2mm. They are to small to biopsy, so we just wait n watch on them for the moment.
The dr was able to resect 85% of the tumor but stopped due to the fact that they were having trouble accessing the area they needed and I was bleeding pretty bad so they stopped. Decided that rather than loose more blood trying he would do it in a different surgery where he had better access after I heal. They had hoped to do the pathology on the biopsy during the surgery, but that didn’t work out. They needed more time so... we won’t have the results till the 24th. That’s when my post op appt is. That is also when we discuss the second surgery and other forms of treatment.
We had really hope this surgery would yield immediate answers, but... what’s another week?...I’m back at home resting now. Had spaghetti for supper. In bed early now, the pain meds make me drowsy.
Thank everyone again for all your help in prayers and financially... it all makes this easier. Much love from our family to yours.
Share if you can please...
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