Camila's Journey
Donation protected
On May 1st our lives took a huge turn.
In March of this year, Camila had a weird episode where she collapsed and, what seemed like, stopped breathing. We have been following a doctor's trail since. Appointments, EEGs and an MRI just last month.
Unfortunately, the MRI confirmed something we thought we would never have to hear. Camila has something in her brain. After rounds of doctors' opinions, discussions and even a brain biopsy, it has been confirmed that Camila has a high-grade, mid-brain glioma. In the past this has been called a DIPG (diffuse intrinsic pontine glioma). There is no cure for this type of rare brain cancer.
Right now, Camila is symptom free, completely recovered from her biopsy and enjoying the beginning of summer with her siblings and family. We are extra thankful for this time right now.
Since there is no treatment for Camila's cancer, (only palliative radiation which we are holding off on because it is mainly used for controlling symptoms which she doesn't have yet), we are really focusing on more holistic tactics mainly with food. We are seeking advice from specialists who know more about diets to help her body fight the cancer. This has proven to be an expensive task given healthy foods for some reason are more expensive in this world (ex. grass fed meat, organic produce, full fat dairy).
We are also focused on giving Camila the best experiences. It is pretty easy to make an 18 month old happy. Everyday is about seeing her smile. If you were to donate, the money would also be used for travel. We are looking to bring the whole family to Guatemala as soon as we can because the kids have family they have not met yet. We will be going to Wisconsin in July and are also thinking of some sort of Disney World trip if we are able to.
Again, if you were to donate the money would be used for medical expenses (ambulance ride, specialists, travel/parking into Boston), food for Camila's diet and trips.
We have already received so much support from family and friends and we greatly appreciate all the love. The love of you all is what is keeping our family going and allowing us to be as strong as we can for Camila. She is already proving to us what life is about with her strength and determination.
Thank you,
The Chacons
In March of this year, Camila had a weird episode where she collapsed and, what seemed like, stopped breathing. We have been following a doctor's trail since. Appointments, EEGs and an MRI just last month.
Unfortunately, the MRI confirmed something we thought we would never have to hear. Camila has something in her brain. After rounds of doctors' opinions, discussions and even a brain biopsy, it has been confirmed that Camila has a high-grade, mid-brain glioma. In the past this has been called a DIPG (diffuse intrinsic pontine glioma). There is no cure for this type of rare brain cancer.
Right now, Camila is symptom free, completely recovered from her biopsy and enjoying the beginning of summer with her siblings and family. We are extra thankful for this time right now.
Since there is no treatment for Camila's cancer, (only palliative radiation which we are holding off on because it is mainly used for controlling symptoms which she doesn't have yet), we are really focusing on more holistic tactics mainly with food. We are seeking advice from specialists who know more about diets to help her body fight the cancer. This has proven to be an expensive task given healthy foods for some reason are more expensive in this world (ex. grass fed meat, organic produce, full fat dairy).
We are also focused on giving Camila the best experiences. It is pretty easy to make an 18 month old happy. Everyday is about seeing her smile. If you were to donate, the money would also be used for travel. We are looking to bring the whole family to Guatemala as soon as we can because the kids have family they have not met yet. We will be going to Wisconsin in July and are also thinking of some sort of Disney World trip if we are able to.
Again, if you were to donate the money would be used for medical expenses (ambulance ride, specialists, travel/parking into Boston), food for Camila's diet and trips.
We have already received so much support from family and friends and we greatly appreciate all the love. The love of you all is what is keeping our family going and allowing us to be as strong as we can for Camila. She is already proving to us what life is about with her strength and determination.
Thank you,
The Chacons
Organizer
Samantha Chacón
Organizer
Marlborough, MA
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