Evan's Brain Tumor Fund
Donation protected
What Happened?
On October 15, 2018, Evan was diagnosed with a rare brain tumor called a craniopharyngioma. There are about 100 cases a year in the U.S. The tumor is about the diameter of a quarter and is causing fatigue, partial blindness, nausea and headaches lasting hours each day. Evan had surgery on November 15th at Children's Hospital Colorado, in which over 90% of the tumor was removed. He spent 5 days in pediatric ICU and was discharged on November 21st.
As a result of the surgery Evan's pituitary gland was damaged, which was expected. He no longer produces three necessary hormones: thyroid, cortisol and DDAVP. Due to the lack of cortisol, Evan is adrenal deficient and requires hydrocortisone. He now wears a medical ID tag and carries an injectable dose in case of emergencies. Due to the DDAVP deficiency, Evan has a condition called Diabetes Insipidus where his body is unable to self-regulate the sodium levels in his blood. He requires permanent hormone replacement on a daily basis for all of these hormones.
What's Next?
Evan was accepted into St. Jude's Children's Hospital in Memphis for proton radiation treatment. He started treatment in February and it ended with his last treatment on April 9, 2018.
Due to the complexity of this diagnosis, Evan has an outstanding team of doctors helping him. His team consists of a Neurosurgeon, Otolaryngology Surgeon, Neuro-Oncologist, Endocrinologist, Ophthalmologist, Radiologist and Neuropsychologist.
Evan will receive MRI's at a minimum of every 6 months for the next 5-10 years. Our hope is that the tumor does not return. Any future occurrences would require additional surgeries, which could lead to more damage to his brain.
How Can You Help?
We are raising funds for the Winscott Family to cover expenses related to Evan's brain tumor. Visit www.EvanWinscott.com for his story, prognosis and commonly asked questions.
On October 15, 2018, Evan was diagnosed with a rare brain tumor called a craniopharyngioma. There are about 100 cases a year in the U.S. The tumor is about the diameter of a quarter and is causing fatigue, partial blindness, nausea and headaches lasting hours each day. Evan had surgery on November 15th at Children's Hospital Colorado, in which over 90% of the tumor was removed. He spent 5 days in pediatric ICU and was discharged on November 21st.
As a result of the surgery Evan's pituitary gland was damaged, which was expected. He no longer produces three necessary hormones: thyroid, cortisol and DDAVP. Due to the lack of cortisol, Evan is adrenal deficient and requires hydrocortisone. He now wears a medical ID tag and carries an injectable dose in case of emergencies. Due to the DDAVP deficiency, Evan has a condition called Diabetes Insipidus where his body is unable to self-regulate the sodium levels in his blood. He requires permanent hormone replacement on a daily basis for all of these hormones.
What's Next?
Evan was accepted into St. Jude's Children's Hospital in Memphis for proton radiation treatment. He started treatment in February and it ended with his last treatment on April 9, 2018.
Due to the complexity of this diagnosis, Evan has an outstanding team of doctors helping him. His team consists of a Neurosurgeon, Otolaryngology Surgeon, Neuro-Oncologist, Endocrinologist, Ophthalmologist, Radiologist and Neuropsychologist.
Evan will receive MRI's at a minimum of every 6 months for the next 5-10 years. Our hope is that the tumor does not return. Any future occurrences would require additional surgeries, which could lead to more damage to his brain.
How Can You Help?
We are raising funds for the Winscott Family to cover expenses related to Evan's brain tumor. Visit www.EvanWinscott.com for his story, prognosis and commonly asked questions.
Organizer
Pete Winscott
Organizer
Gateway, CO
