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#etchsentourage #familyiseverything

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Joe Etchingham’s family moved to Park Ridge in 1971 when Joe was 4 years old.  He attended Franklin, Emerson and Maine South schools and returned to Park Ridge after college/marriage to Kristin to raise his family/daughters:  Ellie (Junior at Mizzou) and Maggie (Freshman at Miami of Ohio). 

In June 2014, Joe was diagnosed with Huntington’s disease.  Huntington’s disease is an inherited disease that causes progressive breakdown/degeneration of nerve cells in the brain.  Huntington’s disease has a broad impact on a person’s functional abilities and usually results in movement, thinking and psychiatric disorders.  Most people with Huntington’s develop signs and symptoms in their 30s or 40s.

After the start of Huntington’s disease, a person’s function abilities gradually worsen over time.  The rate of disease progression and duration varies.  There is no medication or cure for Huntington’s disease.  The time from disease emergence to death is often about 10-20  years.  Eventually, Joe will require help with all activities of daily living and care.  Late in the disease, he will likely be confined to a bed and unable to speak.  To this date, neither Ellie or Maggie have been tested for this genetic disease and this also presents a consideration for their future.  

Last year, Maine South High School, led by Maggie Etchingham and other high school students, generously raised over $60,000 for Huntington's.  Now, the Etchingham family needs our help directly.  

All proceeds from this effort will go directly to the Etchingham family.  At this time, the family will need to make some serious renovations to their first floor to make it handicap accessible to include building a ramp leading into the home. Then, at some point in the near future, plans for Joe’s home care, medical devices, and transportation will also be a consideration.  Finally, as Joe eventually leaves the workforce, the family will also need funding to help with other unplanned expenses to include college tuitions and other expenses his family might face. 

In addition to this fundraising campaign, the Park Ridge Newcomers Club (of which Kristin has been a long standing member) has selected the Etchingham Family as the recipient of their annual philnathropic event called the Labor of Love.  This event will be held on Saturday, March 16th at the Hyatt Convention Center in Rosemont, Illinois.  More details about the event, ways to contribute and get involved beyond this campaign and about the Etchingham family can be found at parkridgenewcomersclub.org.  

The Etchingham’s are a kind, compassionate, and generous family.  They are making the best of the difficulties they are facing and our support will go a long way to help them.  Please consider making a donation to this fund (or help to get the word out),  attending or sponsoring the event in March, and/or donating/securing  a product/service for the silent and live auction which will be available that evening.  Together we can make a difference for the Etchingham family.      #etchsentourage   #familyiseverything
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Donations 

  • John Ward
    • $250 
    • 5 yrs
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Organizer and beneficiary

Kelly Muno
Organizer
Park Ridge, IL
Kristin Etchingham
Beneficiary

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