7TH GRADER HAS RARE DISEASE
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Kylee is 6th Grader from Conyers, GA. He is a 12 old boy who has a rare disease called KIKUCHI- FUJIMOTO. He hasn't been to school in over a month and is going to be out for the next six months.
He started getting symptoms in 2008 and was hospitalized for 45days at Children's Healthcare of Atlanta. He was seen by many Doctors and they did many test ,a biopsy on his back, and lab test. No Doctor could figure out what was wrong with him, where it came from. They just knew that Predonise helped control it and advised me that his illness could come back later on in life.
Recently they have came back. With more symptoms. He was hospitalized for 6 days back at Children's Healthcare of Atlanta. He had Red Rashes all over his body. Mouth,nose, and ear ulcerations, bottom of his feet heels had lesions, swollen knees,chest pains, back pains,stomach pains, lesions on his head,also he had a fever ranging 102-104 for 2 weeks . A newer symptoms was a lymph nodes on the left side of his next. This biopsy finally gave a clue of what was going on with him. Kylee is still in DAILY PAIN EVERY DAY!!!! HE WAKES UP TO STOMACH PAINS AND ALSO HAS LOWER BACK PAINS THREW OUT THE DAY.HE IS TAKING 16 PILLS EVERYDAY.10 IN THE MORNING AND 6 IN THE EVENING. We need your support to help to get KYLEE to his appointments, travel costs,supplies,and to help educate the world of this disease. Please support. Thanks in Advance.
He started getting symptoms in 2008 and was hospitalized for 45days at Children's Healthcare of Atlanta. He was seen by many Doctors and they did many test ,a biopsy on his back, and lab test. No Doctor could figure out what was wrong with him, where it came from. They just knew that Predonise helped control it and advised me that his illness could come back later on in life.
Recently they have came back. With more symptoms. He was hospitalized for 6 days back at Children's Healthcare of Atlanta. He had Red Rashes all over his body. Mouth,nose, and ear ulcerations, bottom of his feet heels had lesions, swollen knees,chest pains, back pains,stomach pains, lesions on his head,also he had a fever ranging 102-104 for 2 weeks . A newer symptoms was a lymph nodes on the left side of his next. This biopsy finally gave a clue of what was going on with him. Kylee is still in DAILY PAIN EVERY DAY!!!! HE WAKES UP TO STOMACH PAINS AND ALSO HAS LOWER BACK PAINS THREW OUT THE DAY.HE IS TAKING 16 PILLS EVERYDAY.10 IN THE MORNING AND 6 IN THE EVENING. We need your support to help to get KYLEE to his appointments, travel costs,supplies,and to help educate the world of this disease. Please support. Thanks in Advance.
Organizer
Radiant Davis
Organizer
Conyers, GA
