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Help Me Win Against Endometriosis

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My name is Samantha Hughes. I have stage iv endometriosis.
I have been living with this disease for almost 17 years now.

There is NO known cure for endometriosis.

Endometriosis is defined as a condition resulting from the appearance of endometrial tissue outside the uterus and causing pelvic pain.
But this description doesnt cover half of what I go through.

As a woman i go through periods (menstruation) that are not the norm. A usual period only causes pain during your period which usually lasts 3-5 days on average. With mild to medium discomfort and pelvic pain.

My endometriosis causes my mentration pain to basically never cease. I go through the month with 3 weeks of being unable to move without screaming in pain and crying.

My endometriosis struggles started at the age of 11. I was in the hospital every weekend with the doctors telling me "Its just PMS you'll learn to deal with it" , "Stop being so dramatic its just PMS" and "Its just in your head". I spent the next several years on different birthcontrol medication and seeing upwards of 20 different doctors. All of which told me the same and accused me of being a drug seeker. When i never asked for narcotics. All i asked was for a reason and a solution to my pain.

At the age of 17 i found a doctor who finally had an Idea. He said "All of your claims of symptoms match with a probable diagnosis of Endometriosis". He referred me to a gynecologist who then sent me to my current Gyno. Dr. Lortie.

I was excited! Finally a reason to all this. Its not all in my head!! She then told me we would need to do an exploratory Laparoscopy to confirm endometriosis. So 6 months later i had my first surgery. Endo was found. She did her best to remove what she could find. And for the next 4 months i was pain free! I was able to go back to work! But then it all came back. The pain. The 9 out of 10 level of pain. The unable to move. The heating pads needing to be warmed every 20 mins to help and causing 2nd degree burns... So i called her back. We then tried depo provera. It didnt work.. It actually made the pain worse to the point of needing help to walk to the bathroom and completely halted my ability to go and do groceries. So after 6 months we stopped it. Then came the second surgery. This one did nothing. The depo provera had done its damage. It actually made the endometriosis grow and spread to my bladder. So after different medications and "new" endometriosis treatments for another year, and even tried medically induced menopause... That alone was hell and useless for my pain. So we decided to try surgery again.
This one worked better!! Pain free for a year! But once again not all the endometriosis was able to be removed so it grew yet again.
I spent the next 3 years in horrible pain. Then I got pregnant. Something i was told i only had a 5% chance of becoming. The pregnancy was hard with my endo pain. But i got through it and had a healthy baby boy. The inly downfall was that giving birth was what sent my body into a kind of shock that created Fibromyalgia. Severe Fibromyalgia.
So years and years of being told its in my head and i need to deal with it to go work. My depression got so much worse.
2 years ago i had another laparoscopy to remove endo. Then at my 6 week follow up my doctor let me know that she thought there was nothing else she could do and did not want to give me more surgeries, unless its a hysterectomy (which isnt a cure) and she sent me to the Pain Clinic once my pain returned approx 2 months later.
At the pain clinics 1st appointment they removed my night time pain medication. Since then i have not been able to sleep through the night. They put me on 3600mg a day of gabapentin. Which does nothing for my pain. All it does is make me drowsy. And makes my legs feel wobbly.

I am extremely depressed. My children. Not only my son but my step children are not able to have normal lives. Just going to a museum with my children or even just the park causes my body to feel like its shutting down. Just showering is exhausting. I cant take my children places. I cant take part of special occasions with my children, family and friends. All of this is very hard when a 4 year old knows when you are in pain and he doesnt deserve to live with his mom being this "broken" my son is afraid to hug me too hard. He doesnt want to go for car rides because "Momma cant. She has pain". Its heartbreaking to say the least...

I am depressed. Exhausted and at my limit. Im sick of being thrown in a vicious circle by my doctors. And all of them dont know what to do next. Im sick of being unable to live a relatively normal life. I am not living i am simply struggling to survive this long long battle with no cure.
So i started doing more and more research and joining support groups and came up with a list of doctors who are part of the endometriosis network and certified endometriosis specialists and who have amazing reviews.

What i am asking is for donations to raise enough money for me to go see Dr Sabrina Lee. In Toronto. Since she is almost 6 hours away i would need help to finance going to see her for the initial appointment then approximately 3-6 months later for the the pre-op and then a week later for the laparoscopy surgery to properly remove the endometriosis and scar tissue from my previous surgeries. I would need help to finance the gas and food to go up there and i would need to get a motel room to stay because my Husband does not drive so i would need to drive myself there and its hard to drive 6 hours. Have an appointment then drive 6 hours back without a second driver. And then same when i have my pre op. And then when i get my surgery i would need to get to a motel close to the hospital the night before and have time to actually eat before having to fast for the surgery and get up early to get to the hospital. After the surgery i would need to pay for a taxi to get back to the motel and stay there for a minimum of 3 days before i can drive myself back home. And then have a follow up appointment 6 weeks after the surgery so i would have to go back up to toronto and getting a motel AGAIN.. Then go back home and hope that this 5th surgery will be the last in my Endometriosis struggle.

I have been fighting this for going on 17 years. I need to see a great endometriosis specialist who will help me get closer to a normal life for myself and my children.
Any help is greatly appreciated as this is very important.

Thank you for your time and help.

Organizer

Sam Hughes-Laflamme
Organizer
Hawkesbury, ON

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