Eliana's medical bills
Abdiel and Alejandra noticed that the baby was having difficulty breathing and seemed very sick. They took her to the emergency room at St. Mary's Medical Center, in West Palm Beach and the physicians realized that something was wrong with her heart. They transported Eliana by helicopter to Holtz's Children's hospital in Miami on June 19th, 2015 for further analysis of her heart. Eliana is currently at Holtz's Children's hospital at Jackson Memorial in the Pediatric Intensive Care Unit.
At this point, there is no cure for DCM, but her treatment options are medications or a heart transplant in the future.
This website was created to assist with the financial responsibilities of all of Eliana's medical bills, medications, and any future procedures that may be needed.
Her future treatment as of right now is still unclear, however Eliana is a fighter and we believe she can overcome this. Any donations made will go directly to Eliana and her family. Whether it is a financial donation or your prayers, both are greatly appreciated. Thank you and God Bless.
Here is a recent update on Eliana and the status of her journey as she has grown. Though her heart transplant has been successful, the journey to full recovery has definitely been a battle of many years and many hospital visits. Post transplant, Eliana faced the task of acquiring the skills any child her age would have already mastered. She began going through intense training in speech, occupational, and physical therapy. After a year, she began to regain the motor skills required to live a normal life. Unfortunately, speech therapy had to be postponed and she has been struggling for the past two years to get a good grasp on eating as most kids are able. In February of 2017, her g-tube was removed. Shortly afterwards in March of 2017, Eliana began to loose weight rapidly and was subsequently diagnosed with Norovirus. Normally, this virus is in the system for only a few days. Due to being immunosuppressed, she has continued to have the virus well over a year. This virus caused her more than anything to have extensive diahrrea that prevented her growth and weight gain. It has also caused allergies to certain foods, making it difficult to continue her development in the area of eating. She was admitted to the hospital many times between April and December to resolve the issue. An NG tube was placed again in to help her begin gaining weight during that time and was left on until an incident that accidentally removed it. The treatment involves special formulas that do not contain dairy to help her gain weight with supplements of food. We are not sure what other options are left to treat the norovirus other than time. IVIG treatment has already been administered but does not seem to have fully resolved the issue.
Despite all this, it has not been all bad. Eliana is a wonderful, strong little girl that loves to dance and play and color. She loves to put makeup on herself and on others. She loves to do puzzles and enjoys challenges. In March, she was able to visit Disney for the first time for her birthday. Laughter is a common sound to hear coming from her direction and it is easy to become inspired by the resilience and strength that comes from one so little that has experienced so much. We are hoping to see her continuing to gain weight and continuing to grow in those areas necessary.
Eliana is fully functioning with the new heart. Her last biopsy had her with 1R rejection. This is the mildest form of rejection and is fully expected so she isn't under any treatment for it. She has a list of meds about a mile long but as time goes by, much of it is becoming less. The hope is to take her off all steroids and supplements and have her only on immunosuppressants and mild heart pressure meds within the year of her transplant, on August 21.
Recently, Eliana celebrated her first birthday as Princess Sofia! The biggest fear we had were developmental delays. Thankfully, she is almost fully caught up and has began walking as well. She's eating solids, drinking as doctors want, and moving around as if nothing ever happened. The amount of doctor visits are decreasing as well. She still requires much care and as such, only Alejandra works full-time and Abdiel does small jobs from home. She has been able to meet a few other babies and is beginning to receive permission on going out and interacting with the environment as well. Overall, her progress has been incredible. A non-profit organization, Special Spaces Palm Beach is also going to do a room remodel for her which is very exciting! They are currently taking donations for her project! Eliana has nothing but good news to give all around. We had a rough start going into it with a few scares and hiccups but now we are finally reaching some state of normal :-)
Thank you for all your prayers, love, support and donations. We are extremely grateful for everything. We love you and May God Bless you always. <3
Update on Eliana: The doctors will do all the prep work for a possible heart transplant because she is presenting symptoms of a heart failure. She will be put on the national transplant list just in case she doesn't progress and gets worse. They put her on IV medication again. We are still believing that God will do a miracle and heal her heart. *****Jesus is the Doctor of doctors*** Noticias de Eliana: Los doctores van a empezar todas las preparaciones para un posible transplante de corazón debido a que está presentando síntomas de falla en el funcionamiento de su corazón. Ella será inscrita en la lista nacional de pacientes que necesitan transplante de corazón solamente en caso de que su condición empeore. Otra vez le están poniendo medicina intravenosa. Continuamos creyendo que Dios hará un milagro y sanara su corazón por completo. ***Jesus es el doctor de doctores***
This beautiful, smiling baby is Eliana Mendez, daughter of our friends Abdiel and Alejandra. They are like family to Jessie and I. Please take some time to pray for this little one and if you feel led to give any little bit helps. Thanks for your support.