Eleane -Lyme disease awareness

$24,915 of $50,000 goal

Raised by 209 people in 26 months
Hi and thank you for taking a moment to read about our much needed fundraising campaign.  I never thought i'd have to reach out in this way to friends, friends of friends and family however we've arrived at a point where some help is needed.  The story...

For the last 3 years Eleane, my beautiful wife, has gone through a large variety of symptoms that have made her health steadily decline. She would repeatedly say to me:

"I don't feel well, I don't feel normal, I feel dizzy, nauseous, I can't catch my breath, I have pain in my heart, my back, my joints, my head, my vains hurt, I'm exhausted, I can't sleep, my arms are tingling, I have shooting/stabbing pains in different parts of my body, my toes are numb, I feel as though something is attacking my blood etc. etc etc."

For the first year I thought she was a hypochondriac and she was driving me crazy but then things got more serious. We've ended up at the hospital a few times because she was having chest pains and thought she was going to have a heart attack resulting in a severe anxiety attacks. The last time at the hospital she was having weird symptoms on the right side of her face and the pain started going up her spine to her neck. They took a CT scan to make sure it wasn't a stroke which it was not thank God.  However to our surprise a benign Meningioma tumour was discoverd on the surface of her brain.  Although scary, the tumour was a best case scenario and will now be monitored to ensure slow growing.  There is a possibility of surgically removing it a later time if any unwanted symptoms arise. This just added to an already very stressful situation and definitely was not welcomed.  As symptoms increased so did the multiple doctors appointments, blood tests and exams to try and get to the bottom of it all.  No doctor or specialist could give any proper diagnosis so she took it upon herself to research what could be causing all of these symptoms.  Around this same time her digestive system drasticly changed resulting in a referal to a Gastrointerologist.  Unfortunately again the root cause of the problem not found.

Now deep into research she came across a story about someone with ALL of the same symptoms who was diagnosed with Lyme disease. There was also a photo of the classic bullseye rash that comes from the bite of a tick. We looked at each other shocked and both recalled a time when she had this exact same bullseye rash. That was the moment the light went on and we started down the road towards diagnosing possible Lyme disease. 

This finding however didn't explain the gastro problems but she was able to identify and self diagnosis a possible cause of these symptoms too. A yeast overgowth in the gastrointestinal tract called Candida Albicans.

To prove the existence of the Candida she decided to go to a Naturopathic Doctor who performed a variety of blood tests that are not offered through our current medical system.  Tests were concluded and Candida did came back positive. We also learned that Candida affects a lot more of the body than just the gastrointestinal tract. In fact, Candida and Lyme symptoms mimic each other in many ways so we still had to know if Lyme was present due to the bullseye rash she had so long ago.

Due to the current protocols in Canada, accurate diagnosis and treatment is extremely hard to come by. Canada doesn't recognize or perform proper Lyme testing so we  paid to send blood samples to Igenex lab in California.  We have just recieved results and  they are positive for Lyme disease.

This is where you come in...

The treatment protocol is a constant, long and expensive one.  Nothing is covered by the Canadian Medical Services Plan or our extended medical plan and  IV treatments, perhaps 100's, are needed to build her immune system and many other therapies to combat the disease.  We've already spent $2500 just in diagnosing and testing and haven't even started the treatments yet. The money we're hoping to raise will cover treatment costs and help to cover living expenses as a probable leave from work is necessary to focus on getting well.

We hope this story brings some awareness about Lyme disease and the struggle to get a proper diagnosis as most of the time people are misdiagnosed.  The story above is 3 years in the making and hopefully anyone else going through a similar struggle can be informed and get on top of it sooner.

Lyme disease is on the rise in Canada, yet diagnostics, treatment, physician and public awareness are largely inadequate. The Canadian Lyme Disease Foundation ( https://canlyme.com/) is dedicated to raising awareness and promoting Lyme disease research, education and treatment. 


Thank you very much for your time and support.

Love Dustin & Eleane &  Disco our doggy :)
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Hi everyone :) Its been quite a while since we updated all of you amazing people who helped us last year. There is lots to share. As you know Lyme disease is a long term and complicated disease but we are happy to say Eleane has made some improvements. There is still many bad days mixed with good days and we continue to fight for more good ones. The end goal is to get to remission state.

You helped us raise and incredible amount of $17,000 through this platform which was spent on many treatments (IV's, a ton of supplements, Organic food, Naturopathic visits, Massage therapists, Chiropractor, Colon Therapies, acupuncture, Infrared sauna sessions and Microcurrent therapies). Eleane and I are so grateful for all of the help from everyone last year and we couldn’t have gotten this far without you. Thank you!

Current situation:

Eleane needs to continue with all the therapies and protocols mentioned above so that she does not regress and keeps moving forward.

Below are the details of Eleanes plan for the near future so we can afford everything we need to live and continue treatments.

Eleane is still not able to work a full or part time job with any stress associated with it. She worked in the hospitality industry for 17 years but unfortunately the long hours and nature of the industry is not what her body can handle anymore. She has focused in on a career that will not only benefit her own life and health, but many others as well. It’s one that will not come with too much stress or physical labor and something she can do far into the future.

This plan came together organically over the last year while researching and studying all of the different things required to get better. This included many therapies, food as medicine, nutritional information and supplements. This planted the seed and she started to research how to become a Holistic Nutritionist (More on this in a moment).
During this time of discovery, she was also suggested to try a therapy called Acuscope & Myopulse Micorcurrent which made a significant difference in her wellbeing. This device works on a cellular level, reduces inflammation, relieves pain and promotes much faster healing for anyone suffering from injuries and/or chronic illnesses. The results she personally felt at the end of her sessions were very positive. Unfortunately there wasn’t enough money to book another block of sessions. This lead her to ask the therapist if she would consider training her to administer the therapy as an assistant with intentions of working together afterwards. This would ensure Eleane could continue with treatment for free and not have to pay for anymore sessions. The therapist agreed to take her on. During her four weeks of training on the device she saw many amazing results with clients with different injuries or ailments. Unfortunately the clinic became too busy and there wasn’t enough time for Eleane to receive her own treatments as often as required. The most important thing was for her to receive this treatment so we made the difficult decision to invest (Visa & Line of Credit) in the devices so that they were at our home. This way she could administer therapies on herself as needed with the bonus of being able to help others too. This also provides her the opportunity to slowly introduce herself back into the work force by doing something she is passionate about, helps others and provides her a life/work balance. Eleane did her research, got in touch with the supplier of the Acuscope and Myopulse ( https://www.biohealth.ca/about/background) and acquired the devices. She also received additional training from the supplier and received a certificate that states that she has been trained on the proper use of these devices.

Now back to the Holistic Nutritionist part… she is currently researching to find out if she qualifies for any government or private funding as there are programs available to help people in her position. She has narrowed it down to the Institute of Holistic Nutrition ( http://instituteofholisticnutrition.com/schedules/vancouver/) and hopefully she will receive assistance to start in September. Fingers crossed. If accepted, Eleane will be taking this course part time over 2 years so she can continue to focus on her own health as well as proceed with the micorcurrent treatment mentioned earlier. She is passionate about everything health related and above all determined to create awareness and help others.

It's been quite the journey thus far and we’re taking it one day at a time. I started a new career with a decent wage however 1 income in Vancouver still makes things tough.

We are optimistic for the future and Eleane has some positive things ahead. Her improved health is obviously first. Next is to continue using the devices to build her client base and help people in need while generating some income. The second is the certified Holistic Nutritionist course in September. These 2 things combined will set her up for success.

We wanted to send and update a long time ago but held of until we had some positive things to share. There’s light at the end of the tunnel and feel we are getting closer, however Eleane still needs some help right now until she’s self sufficient again. If you’re able to help, your contributions will go to the continual treatments she needs of course, as well as help to decrease the debt the Acuscope & Myopulse devices have created.

Any contribution is much appreciated.

Thank you so much and much love to everyone.

Dustin & Eleane
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Hi everyone. This isn't as much of an update as it is an extremely interesting read and highly details Lyme and it's origins, make up and lot's more. Really interesting stuff.

http://news.nationalgeographic.com/news/2014/02/140228-lyme-disease-borrelia-burgdorferi-deer-tick-science/
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Happy to update that because of this fundraiser, Eleane was able to take her leave from work. She is now in focus mode to get better and had her first of many appointments today. We'll continue to update on her progress! Thank you all again ❤️
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When you wake up and you're so completely overwhelmed with the love and support received in 24 hours, you let out a cry of gratitude. What an amazing feeling it is to have everyone you know pick you up and make sure everything is going to be okay. So grateful...
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$24,915 of $50,000 goal

Raised by 209 people in 26 months
Created March 27, 2017
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EA
$100
Emma Giles Aranda
24 days ago
SM
$50
Suky Martinez
29 days ago
MP
$50
Maribel Palma
1 month ago
WK
$100
Winnie Knudsen
1 month ago

We want you to get better ❤️

$50
Tina McNulty
1 month ago
IL
$100
Irena Lautar
1 month ago
DU
$100
Devon Urwin
1 month ago

Love you guys.

GG
$20
Gaby Gonzalez
1 month ago
GV
$200
Gabriela Villarreal
1 month ago

Te queremos un chingo!

JZ
$500
Jorge Zermeno
1 month ago
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