Help Heal A Healer

$10,402 of $20k goal

Raised by 156 people in 30 months
Karen Vaughan  BROOKLYN, NY
I was diagnosed with Parkinson's Disease 6 years ago.  I work as an acupuncturist, herbalist and health writer, which all require a steady hand.  I have been helping run free clinics since 9-11 and do a lot of public health education on Facebook and my blog Natural Health by Karen and teach as an adjunct professor. My private practice specializes in complicated conditions which is rewarding but not lucrative.  At best this is a breakeven proposition so my funding for treatment is limited.  I have mastered the art of ambidextrous needling but the tremor is starting to spread to the other side and it will eventually affect my ability to treat patients.

I have found a promising experimental stem cell treatment by StemGenex in La Jolla, California,  Unlike most stem cell treatment centers they use an intranasal administration to get stem cells to the brain, along with intravenous and direct injections and their internal statistics on Parkinson's patients are much better than others since getting the stem cells into the brain is difficult.  I have been pre-approved for treatment but insurance will not cover experimental procedures.

The cost of treatment is $15,900 plus air fare of $800 and $2500 for a course of hyperbaric treatment as aftercare.  There is a 9% commission on gifts through Go Fund Me,

I will write in detail about the experience, documenting it with video and making medical information available regardless of outcome. This will help others considering stem cell treatment.   I will focus on what can be done to enhance the treatment,  based on interviews with patients, doctors and my own experiences.
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Update 45
Posted by Karen Vaughan
9 months ago
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I want to thank those of you who have supported me in this endeavor. Two special modalities have helped me recently, craniosacral balancing and New York's legalized cannabis oil. The craniosacral balancing settles the tremors almost instantly (but it only works with a practitioner, not a rubber still point inducer.) The medical cannabis is a very low THC breed 1:1 with CBD that I take sublingually. Alas it is not covered by insurance (or even credit card thanks to our Federal Government's obstinate insistence that it couldn't possibly have medicinal value so banks can't be involved. You'd think that the 1933 AMA letter to Congress that doctors couldn't practice without it might suggest scheduling down the medicine, even if they ignore all the new research!) But the tincture, which won't get you high does help calm the tremors and make the high price, and carrying around large amounts of cash, worthwhile. Of course nothing overcomes the subway ride at setting off tremors but people are quite nice about offering me a seat.

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Update 44
Posted by Karen Vaughan
17 months ago
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I was asked to speak on the herbal management of Parkinson's and MS at the American Herbalists Guild 26th Annual Symposium in Granby Colorado this month. The talk was short but well-received and is available from the company who recorded the Symposium.

I talked about the blood brain barrier and how leaky gut allows inflammatory proteins to circulate systemwide, resulting in leaky brain. Brain inflammation leads to diseases like MS, Parkinson's and Alzheimers, especially when lymphatic drainage is compromised. Talked about diet, the special role of gluten and botanical treatments.

For those who wanted my talk on Parkinson's and MS, it is now available - Session 10 of the American Herbalists Guild 26th Anniversary AHG symposium ), 15-18 2015 at Backcountry recordings via backcountryrecordings.com or 904-460-2379. $10 including 2 other talks. The notes are at http://www.americanherbalistsguild.com/sites/default/files/neurology_and_herbal_practice_short_0.pdf
AHG at YMCA of the Rockies
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Update 43
Posted by Karen Vaughan
17 months ago
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My thoughts are that stem cell strength is paramount in deciding whether or not to try stem cell implants for Parkinson's. I think that Stem Genex procedurally did everything right- they injected stem cells into the nasal turbinates to cross the blood brain barrier, and injected platelet-rich plasma with the cells at the site of the direct injections. The injection site which had the most effect was actually an acupuncture point, Stomach 36, and it improved my stamina for quite a while. However in this country stem cells for most uses are restricted to adipose (fat) cells and while they make a lot more stem cells than cord blood does, the cells can be hypoxic (lack oxygen so be of lesser quality) in fat people. 400 times as many weak cells is still weak. If I were to do it again I would go out of the country and use stem cells from cord blood, But if you are thin with good circulation it might work better.

Parkinson's is difficult to treat because the most affected part of the brain is deep -other neurological conditions may be closer to the blood brain barrier. I still think that stem cell treatment for this condition has promise, but we are still researching what might work best.
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Update 42
Posted by Karen Vaughan
20 months ago
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I had been somewhat discouraged by the effect on the Parkinson's disease but two different people in the past week have spontaneously remarked that my tremors have reduced. So it may well be that I am not the best judge- I only pay attention when the tremors are active.

It is true that I haven't had the dramatic changes that I expected. And I might have done better with stem cells taken from the cord blood of a newborn rather than my own adipose (fat) cells. When you are fat the cells can be hypoxic and less vital. One doctor I spoke with in Mexico said he prefers cord blood because the stem cells are more active, even if there are fewer of them.

A friend tells me that our neighbor is still experiencing improvements 2 years after his stem cell implant - and it took a while to build up. So there is still help. It has been only 6 months.

I was advised to invest in a vibration platform to increase the stem cell activation and to reduce Parkinson's symptoms. I used one while visiting my parents and it definitely activates circulation. So I am saving up for it now.
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Read a Previous Update
Byoung Soon Kim
9 months ago

I believe MS and Parkinson's disease can be easily treated. Please refer to below for testimonials. http://saahm.proboards.com/thread/727/parkinsons-diease http://saahm.proboards.com/board/14/testimonials?q=multiple+sclerosis

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Wendy Whitman
17 months ago

Hi Karen, I remember awhile back you said you were getting some (maybe smallish)results. But now it sounds like this procedure was far from optimal. If that is the case, I am so sorry this did not meet your hopes.

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Kalei Alexander Mendiola
17 months ago

how are your symptoms now? im considering doing this for my parkinson's

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Louise Mitchell
20 months ago

Hi Karen, also, increase the amount of vegetables and healthy animal foods you eat (from animals raised outside on pasture) and decrease the grains you eat until you phase them out completely. Check out neurologist Dr. David Perlmutter's important work on his website: http://www.drperlmutter.com/ and in his books Grain Brain and Brain Maker. I would love to hear about your progress. (Also, looking forward to learning about Dr. Datis Kharrazian's work listed in previous post by Tom).

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Tom Tom
23 months ago

Read datis kharrazian 'why isn't my brain working' and you will understand neurological damage and what to do about it

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Jane Lord
29 months ago

Karen, you might try breathing vaporized H2O2 to get oxygen.....3% straight in the vaporizer....

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$10,402 of $20k goal

Raised by 156 people in 30 months
Created September 13, 2014
VH
$50
Valerie Houy
8 months ago
1
1
$20
Brittany Finnegan
8 months ago
1
1

♥ ♥ ♥

SF
$50
Sofia Felippes
8 months ago
1
1
$15
Anonymous
9 months ago
1
1
GE
$50
Gail Edwards
9 months ago
1
1
$50
Thomas Turpen
9 months ago
RC
$50
Rosanna De La Cruz
9 months ago
1
1
AK
$25
Anita Keire
17 months ago

My prayers are with you.

PH
$25
Peter Halpern
17 months ago

I have a doctor who specialized in stem cell use of umbilical cord in Panama. I will speak to her. She know what all the countries are doing.

KB
$50
Kirsten Bernhardt
17 months ago
Byoung Soon Kim
9 months ago

I believe MS and Parkinson's disease can be easily treated. Please refer to below for testimonials. http://saahm.proboards.com/thread/727/parkinsons-diease http://saahm.proboards.com/board/14/testimonials?q=multiple+sclerosis

+ Read More
Wendy Whitman
17 months ago

Hi Karen, I remember awhile back you said you were getting some (maybe smallish)results. But now it sounds like this procedure was far from optimal. If that is the case, I am so sorry this did not meet your hopes.

+ Read More
Kalei Alexander Mendiola
17 months ago

how are your symptoms now? im considering doing this for my parkinson's

+ Read More
Louise Mitchell
20 months ago

Hi Karen, also, increase the amount of vegetables and healthy animal foods you eat (from animals raised outside on pasture) and decrease the grains you eat until you phase them out completely. Check out neurologist Dr. David Perlmutter's important work on his website: http://www.drperlmutter.com/ and in his books Grain Brain and Brain Maker. I would love to hear about your progress. (Also, looking forward to learning about Dr. Datis Kharrazian's work listed in previous post by Tom).

+ Read More
Tom Tom
23 months ago

Read datis kharrazian 'why isn't my brain working' and you will understand neurological damage and what to do about it

+ Read More
Jane Lord
29 months ago

Karen, you might try breathing vaporized H2O2 to get oxygen.....3% straight in the vaporizer....

+ Read More
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