EB Won't Rule Me

Hello World,

My niece Destiny Fuentes was born with Epidermolysis Bullosa or EB for short. It is a rare genetic connective tissue disorder that affects 1 out of every 20,000 births. This involves a lot of doctor visits, bandages, padding, medication but most of all, hope that one day there will be a cure.  There are those bad days when the pain of the blisters and open wounds is so unbearable, she can't walk. She tries to escapes the pain by making youtube videos to help spread awareness and educate people about EB. Money raised will go towards bandages, medication/treatments , doctor visits not covered by the state. As well as any necessities needed for her to have some type of comfort in her own home while she copes with the pain.

Check out her youtube channel to see a piece of her life.
0ur Destiny

Left: Destiny/Right: Diane De Anda (mother)

To better understand EB, check out the below link.

http://www.debra.org/whatiseb

Thank you for taking time to read a bit about her Story.